Change in Medication; Maybe Zinbryta?

March is Multiple Sclerosis (MS) awareness month, were you aware of that? It is estimated that over 2.3 million people around the world have MS so I think it is fair to say that much awareness is needed and since you don’t really see commercials on TV about MS it is up to us as individuals to advocate and spread awareness about MS. I am not sure how much I can personally accomplish online but for the most part that is where I will be trying to do my part. I have never really done much for Multiple Sclerosis awareness month but this year I am going to try to make more of a difference in spreading awareness even if it is just a small difference. You may feel like you are just one voice and that one voice can’t make a difference but if everyone tries to make their voice heard then collectively we will all influence the conversation about MS online and in 2017 a conversation online is probably the best way for a message to be heard. Just think about how loud a chanting crowd can be; the spotlight of the internet is always pointed at what is making the most noise even if it just starts out as simple chatter on Facebook.

Read more

I am Back! First 2017 Post! Doing OK-ish?..

Wow. Almost March and this is my first post of 2017. I wish I had a good excuse for why I went M.I.A. for so long but I don’t feel like I do… I mean, life has been crazy; my family and I just moved (only further down the freeway) and as if my health was already not bad enough the move made everything worse. I pushed myself way too hard in an already stressful period of time and then I spent a long time just trying to recover as well as dealing with (possibly) some new health problems. So much has happened that I should have been writing about but I have just not felt so great which means I really did not want to do much of anything but rest. But I finally am starting to feel a lot better and I have pretty much settled into this new place and my new routine so now I am trying to catch up in life and work my way forward. And oh yeah, in January I started working with iConquerMS which I will explain in a minute.

Read more

Blurry Vision, Lemtrada, Ocrelizumab

So I had two days of feeling OK, by which I mean not miserable haha… But now everything feels out of whack again. I think it’s because on Tuesday I saw my neurologist which meant leaving the air conditioned house into triple digit weather… I also ran a couple errands on the way and I think the heat just wiped me out but no matter how much I rest it doesn’t seem to affect the rate at which I recover. It take one day to screw everything up and then weeks to fix it; I have said before that it is like breaking a plate, it take two seconds to drop it and watch it shatter into a thousand pieces but then it takes days or weeks to glue it all back together and even with all the pieces in place it will never be the same again. After a relapse you never heal 100 percent; your “baseline” always changes just a little bit and over time your baseline gets progressively worse. That is the course of this disease…

Read more

My Vitamin D Levels

OK, anytime I talk about any sort of MS issue with people the first thing they ask me is if I have had my vitamin D levels checked. I know they mean well but it sort of annoys me, having to explain over and over again that I know about the whole “people with Multiple Sclerosis, for whatever reason, have low vitamin D” thing. But how could they know that I know? So I need to chill a bit… it’s just me haha… I figured though, that I should post all my Vitamin D information up on my blog, I don’t have much but his is to show that yes, I have had my levels checked and I am working on it.

Read more