Ugh! I am in such a bad mood today! From the moment I woke up I was just… angry? You see, yes, I am sleeping way better but I still don’t wake up feeling rested (like most of us with Multiple Sclerosis don’t feel). In fact, I really can’t remember the last time I woke up and felt like I actually got the amount of sleep that I did; refreshed and recharged, ready to start my day! Pft… No… Just fatigue. Doesn’t seem to be secondary (the result of poor sleep or some other symptom) since I am actually sleeping again. So that tells me it’s primary (lassitude). Fatigue for no reason other than the fact that MS IS BS.
I think I started to have a sort of flare on Monday night. I had a crappy day, nothing was going my way and I think that caused me too much stress. I started falling asleep watching TV and as I was getting up to turn everything off I noticed something weird. Because I was in that half awake / half asleep stage, both my eyes were not fully open. I stopped to notice that if I had my left eye open and my right eye closed everything looked dull like someone desaturated my vision a bit. Right eye open and left eye closed? Colorful! It was really weird. I have had optic neuritis flare up so many times since my diagnosis. My vision will never be the same again but this was the first time it had affected my vision’s color. Usually everything is just really fuzzy… I have even had episodes where while I am trying to fall asleep I would see quick/random flashes of white lights. Open my eyes? My room is empty, no sources of light but this? This was different than what I am used to.
Optic Neuritis is one of the more common presenting symptoms of Multiple Sclerosis (MS) and can cause blurred vision, color blindness, loss of vision, pain behind the eyes and even flashing/flickering lights. This usually occurs in one eye but both eyes being affected is not uncommon. Typically people just complain about their vision blurring and never experience anything else.
It’s been a while since I have written anything here and this is going to be a short post but after my second round of Lemtrada I just did a few videos and rested – not that I was feeling terrible, I just wanted to let my body recover uninterrupted. This round was really easy compared to last year and within a week I was already starting my basic exercising back up. My skin is just all dry and a little bumpy from the rash and… that’s about it. I have also been sleeping OK so a break from insomnia is much appreciated!