My last day of Solu-Medrol (IV steroids) was Friday and I have been pretty surprised at how it has affected me. For years steroids have stopped doing anything for me besides leaving a weird taste in my mouth. This time around I had that “wired” feeling again and I constantly felt like I was running behind schedule to get something important done despite the fact that I had finished all that I needed to do. It’s miserable because it’s impossible to “wind down” for the night. I lie down to go to sleep but still I feel like I should be doing something and so I start creating a to-do list in my head for the next day. I should also note that being “wired” on steroids just means your brain (at least mine) is constantly racing, breaking every little thought down into more thoughts, and just generally overthinking things that I would have never otherwise thought of. I still felt so physically exhausted I could barely keep my eyes open! Yet I could not fall asleep for hours even after taking Klonopin and cannabis.
What a 5 days! It felt like forever! Each day, the closer to completion I got, the slower time felt. It didn’t help that a couple of the nurses had a bit of trouble placing the line… several times… resulting in multiple pokes and bubbles of burning Solu-Medrol under my skin. So much fun! I don’t plan on ever going back there again. First of all, it was ran out of a 2 bedroom house converted into a medical building. Lots of businesses do that in Redlands, CA but still, it was kind of weird at first. Then I just don’t have any desire to put my veins through that pin-the-tail-on-the-donkey-game again. Never even had that issue with medical students! But I am done. I was supposed to start a Prednisone taper today but guess what? My doctor never ordered the Prednisone despite my nagging calls! Oh well.
Solu-medrol has not affected me like this in years. I feel terrible. Especially because of the sleep issues. Night one I fell asleep at 8:00pm but woke up wide awake at 2:00am and just lied there till about 6 or so. I should note that I was mentally fatigued but physically awake which is the opposite of what I usually am. The next night I took a little more to help me fall and STAY asleep; clocked in about 14 hours of sleep! Oh, reminds me of high school haha.
I have not been feeling so great… I am no longer even sure if I am relapsing or not! It’s just been a steady decline for the last couple of months if you ask me… I have felt not only fatigued but lethargic… the other day I felt like all my muscles at been worked out to the point of physical fatigue so even lifting my arm felt painful… sore… like my body lacked the physical energy to really move! I have been so dizzy and my vision (oscillopsia) has been crazy, I just don’t want to move or even keep my eyes open! I have been sleeping so much, the other day I pretty much slept all day which messed me up because that night I could not sleep! The next day I felt like garbage but was able to keep myself up so that come night I could sleep.