Ugh! I am in such a bad mood today! From the moment I woke up I was just… angry? You see, yes, I am sleeping way better but I still don’t wake up feeling rested (like most of us with Multiple Sclerosis don’t feel). In fact, I really can’t remember the last time I woke up and felt like I actually got the amount of sleep that I did; refreshed and recharged, ready to start my day! Pft… No… Just fatigue. Doesn’t seem to be secondary (the result of poor sleep or some other symptom) since I am actually sleeping again. So that tells me it’s primary (lassitude). Fatigue for no reason other than the fact that MS IS BS.
I don’t think I woke up with it but halfway through the day my vision got really blurry! It has been a long time since I last experienced this. I first noticed it when I looked down at my phone to check something and I felt like I could hardly read! It was like I was wearing someone else’s glasses! I had to strain my eyes to make them focus but as soon as I relaxed them everything was blurry again. I was downstairs (where it was about 80 degrees) for a lot longer than usual this morning and then I went to the store and breakfast/lunch so more than likely it’s from my heat exposure… This extra sucks because it is the blurry MS vision on top of my oscillopsia! So keeping my eyes open right now really sucks… I am only writing this very short post because nothing ever really changes in my life anymore but now this so I want a record of it (mostly so I know when it started in case this lasts more than 24 hours). I feel like I can’t really see what I am typing so I am getting off… Hope everyone is well.
Wow… So…. It was hot. Sunday sucked but Monday (yesterday) was even worse. It was over 80 degrees by 8am and by 10am we were already over 100; we actually held steady at 113 for most the day! I had my portable A/C running, the house A/C and my giant fan but still it was about 80 degrees in my room! The rest of the house was horrible so forget trying to go downstairs and cook! I did bust out my cooling vest for the first time in years and I will say it helped the “keep Matt cool” effort.
Well, the last couple of days I have started feeling a bit better, I don’t have that heavy “I am sick and need to rest” feeling but the oscillopsia is still horrible. I am still pretty fatigued but it’s manageable now; worse than usual but not as bad as a few days ago. Although I do not feel like I did a few days ago I do feel like I am back to square one… My muscles (mainly my legs) do not feel as strong, as if I have not used them in weeks. My vision is back to how it was a couple months ago so I feel like all the small improvements I made over the last two or three months has been undone. So time to “start over”.