Trying to Change My Schedule

I got up at 4:00am today, I wanted to try to be awake longer when it was cool out and then try to sleep through some of the heat. I had a bunch of alarms set on my phone, one to first wake up and take a Nuvigil to see if it helped me GET up despite all my absent or negative experiences in the past. So I took a Nuvigil and lied back down and before my next alarm went off my brain was chatting so much I had to just get up. I assume that was the Nuvigil because lately I have had no problems just going back to sleep.

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Survived our First REAL Heat Wave

Wow… So…. It was hot. Sunday sucked but Monday (yesterday) was even worse. It was over 80 degrees by 8am and by 10am we were already over 100; we actually held steady at 113 for most the day! I had my portable A/C running, the house A/C and my giant fan but still it was about 80 degrees in my room! The rest of the house was horrible so forget trying to go downstairs and cook! I did bust out my cooling vest for the first time in years and I will say it helped the “keep Matt cool” effort.

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Another Relapse – Tired of Writing About…

Another gap in my blogging, but why? Well first comes the excuse; I have been relapsing… again. I had been really fatigued after what felt like a week of insomnia and then on Tuesday (the 24th) I woke up crazy dizzy and feeling weak. The sort of dizziness that is not the result of oscillopsia. I had forgotten just how bad it could be so I guess that even though I still have remnants of these symptoms every day, I am actually doing way better than I was last year. The improvements have just been so slow I could hardly notice!

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Slow Week and New A/C

OK, I am alive, I have not been active online though because I have just been so fatigued and all around feeling kind of… slow? Just unmotivated really. I have just been lying around not even wanting to move. I am not sure what it is? It has not been too hot especially since I got my new air conditioner (THANK YOU everyone who donated and helped me raise money, it would have taken me all year to save up that money on my own!). I still feel kind of “groggy” today but I was able to get myself up and a little active, by which I mean, I answered all my backed up emails and I am writing this very short post just to check in.

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