What is Multiple Sclerosis?

What is Multiple Sclerosis?

Multiple Sclerosis (MS) is believed to be an autoimmune disease in which the body’s own immune system attacks the protective cells along the nerve in the central nervous system. More »

What is a Lumbar Puncture?

What is a Lumbar Puncture?

Do you have a lumbar puncture (spinal tap) comping up? Click here to learn about what it is, how it’s done and what you can expect. More »

MS Nick Names; My Dark Passenger

MS Nick Names; My Dark Passenger

I have never called my MS anything, it just wasn’t me, I always felt a lot of these names were too… cute? They didn’t do the evil known as Multiple Sclerosis any justice I suppose. More »

What is Lemtrada?

What is Lemtrada?

Lemtrada is given intravenously over 5 consecutive days and then 3 consecutive days 1 year later. More »

Shocking Sensation! What is Lhermitte\\\'s Sign?

Shocking Sensation! What is Lhermitte\\\'s Sign?

More than two thirds of those with Multiple Sclerosis experience what is known as “Lhermitte’s Sign” or “The Barber’s Chair Symptom”. More »

How is Multiple Sclerosis Diagnosed?

How is Multiple Sclerosis Diagnosed?

Here I’ll explain what you need to do to know if you have MS or not but more importantly is why you need to do this. More »

 

The MS Hug; I Forgot How Much it Sucks

This is going to be short and to the point. The day before yesterday I woke up with a minor pain on the right side of my chest towards the top. At first I thought nothing of it, must have just slept weird. As the day went on it got much worse and starting hurting to take a deep breath. Sometimes as I breathed out it would feel like every muscle in my torso was involuntarily contracting in attempt to squeeze every bit of air out of my lungs. Aww man, I remember this. The MS Hug…

LDN Day 10; Been Busy

I take my LDN right before bed each night (I have heard reasons for taking it either in the morning or at night and decided to try taking it at night) and as of this morning I have taken LDN for 10 nights. What have I noticed so far? Well first of all my dreams have definitely been really vivid and a lot of people don’t like that but I kind of do. It makes each night more “interesting”, it’s like free entertainment for 8 hours, an “escape” from reality. One problem is I started waking up at like 3am and at first I would wake up feeling just as ready-to-go as any other day so I was getting a lot done. I was good with that but then I started waking up at 3am feeling like… I had woken up at 3am…  Even when I would take my 1mg of Temazepam! I also picked up some magnesium but it’s a 400mg tablet which kind of scares me because magnesium is one of those supplements that too much can be really bad so I have been cutting them down to about 300mg. I sort of feel like it helps me sleep better and I have slowly been not waking up at 3am but maybe that would still be the case without the magnesium? I have no idea but I am happy to be getting a little more sleep again.

LDN, Zinbryta, Ampyra, and More!

On Tuesday I finally saw my neurologist. There was just so much to talk about that I feel we missed some stuff but we still addressed a lot! We first tackled my lab orders and even though it is not a new order for EMSI (the mobile lab I use) I will be happy if I can just see my own labs even if that means going back to trying to get to a LabCorp every 4 weeks. We also got the clerical roadblock cleared for my Zinbryta. Kind of stupid though, they only send you 1 needle a month. I am not sure if I will have to jump through the prior authorization hoops every month or not so that will be interesting… I just want my first dose already!

What the Hell is Wrong With My Body?