Starting Steroids for Relapse Tomorrow

This relapse is just wiping me out. It’s been a while since I felt like one hit me so hard. I saw my neurologist the other day and he agreed. I start a 5-day course of Solu-medrol (IV steroids) tomorrow and that will be followed by a Prednisone (oral steroid) taper. Before my infusion tomorrow I actually have an MRI to see where things are at… I don’t feel any different than I did right before I did Lemtrada so I am not sure what to expect… not sure what the next step in my treatment will be. All I know is I am once again changing my diet. Once I feel like I am not relapsing I am really going to push the exercise thing. I need to make my health my life, as in, be super pro-active, something I wish I had maintained since first being diagnosed. I just want to feel like I have some sort of control over my life again, my body. I’m sick of being tired and tired of being sick. Well, that is it for today, I am so tired, fatigued, weak, and I just can’t see. I will try to post more details tomorrow if I am up for it but for now I need to keep resting.

Matt Allen G

I was diagnosed with Multiple Sclerosis (MS) in 2010 at the age of 20. It's been a battle ever since and I have always shared my story and struggles online!

15 thoughts on “Starting Steroids for Relapse Tomorrow

  • August 14, 2017 at 12:14 am
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    Thanks for updating us, Matt. We’re allrooting for you. You’re stronger than MS

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  • August 14, 2017 at 1:05 am
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    Hang in there. It’ll get better.
    Good luck with your up coming MRI.
    Stay positive.

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  • August 14, 2017 at 1:28 am
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    You have sorted out the disease and treatments and given a voice to PwMS. You and Marc have inspired those who do not have MS and for those of us who have been diagnosed with MS. Best wishes.

    Michael

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  • August 14, 2017 at 4:20 am
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    Get your testosterone checked

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    • August 14, 2017 at 2:47 pm
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      I already did and it was normal. I was hoping it would be low because that would be such an easy fix to so many issues

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  • August 14, 2017 at 9:21 pm
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    Yeah, waiting sucks.
    But last week my hopes spiked with news out of Ohio State.
    Did you hear about that new Tnt (tissue nanotransjection) technology? That’s amazing. That’s like an answer to our prayers.
    The ability to reprogram any cell into specific specialized cells. Wow.
    Why this news has not hit MS blogs is beyond me.

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    • August 14, 2017 at 9:29 pm
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      Oops. That’s supposed to be “nanotransfection”.

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    • August 18, 2017 at 2:55 pm
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      Hmm, I have not heard of that but then again it sounds like a type of stem cell, I’ll have to look into it

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      • August 18, 2017 at 4:47 pm
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        Yeah.
        They use DNA and nanotechnology to reprogram stem cells.
        Or something like that.

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        • August 18, 2017 at 5:25 pm
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          interesting, I will keep an eye out for it and post anything I find to iConquerMS (Twitter/Facebook)

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  • August 16, 2017 at 1:11 am
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    Always glad to see your post,you are always transparent about this Monster. Some relapses are worse than others,here’s to hoping you recover with the Solumedrol cocktail quickly! Thanks for keeping us posted on your Lemtrada journey-do you think so far it is given enough?

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    • August 18, 2017 at 2:56 pm
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      I think it may be too soon to tell although I have my MRI from the other day so we will see what my neuro thinks,

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