LDN Day 10; Been Busy

I take my LDN right before bed each night (I have heard reasons for taking it either in the morning or at night and decided to try taking it at night) and as of this morning I have taken LDN for 10 nights. What have I noticed so far? Well first of all my dreams have definitely been really vivid and a lot of people don’t like that but I kind of do. It makes each night more “interesting”, it’s like free entertainment for 8 hours, an “escape” from reality. One problem is I started waking up at like 3am and at first I would wake up feeling just as ready-to-go as any other day so I was getting a lot done. I was good with that but then I started waking up at 3am feeling like… I had woken up at 3am…  Even when I would take my 1mg of Temazepam! I also picked up some magnesium but it’s a 400mg tablet which kind of scares me because magnesium is one of those supplements that too much can be really bad so I have been cutting them down to about 300mg. I sort of feel like it helps me sleep better and I have slowly been not waking up at 3am but maybe that would still be the case without the magnesium? I have no idea but I am happy to be getting a little more sleep again.

Now part of me feels like I can last a little bit longer throughout the day, as in, more energy. Not a lot, but enough that I had to stop and think about it. I still feel fatigued from the moment I wake up to the moment I go to bed but I sort of feel like I have been getting more done. But maybe that is just in my head? I don’t know? I guess I did start LDN with the idea that if it just made me think I was feeling better that would be all I need because I feel like quality of life is based on subjective experience more than objective. But everywhere I read online says it takes over 6 months (or so) for you to really start seeing the effects of LDN so I guess I will stay on it since it’s not causing me any bad side effects (as of now, knock on wood).

In my last post, I talked about a portable vaporizer I bought for cannabis. Well, after a few more days of use the cannabis strain I was using seemed to lose its edge so now I wonder how much of that positive experience was in my head? I can’t imagine you can build a tolerance after one dose! I also started to realize using the device itself was really difficult for someone with fine motor issues, specifically loading the device. The loading hole was so small that I had to make a little funnel out of cardstock so I would not spill stuff everywhere but then because of the shape of the device it would sometimes knock over and spill everything anyways. So I finally contacted them and I was able to return it so I will have to eventually save up for a more disabled-user-friendly model. I can wait because I really want to find a specific strain that I read about in an article about a guy with MS who said this strain helped him so much (with a lot of the symptoms I have) that he started growing it on his own. It’s a really hard strain to find (it seems) so I got time to save up. I have to reiterate, I am just a guy with MS who pharmaceutical medication for certain symptoms has failed. I am just desperate for relief.

But yeah I have been really busy (preoccupied) trying to develop a successful system for iConquerMS‘ social media. Anyone who follows iConquerMS on Twitter may have noticed that I have really stepped up my activity online. I always had that “perfectionist mentality” growing up and some of that has stuck with me. Sometimes, no matter how good I do at something, I can only think about how I could have done better which is where I am at right now. So I really want to be better at this and I have just been working nonstop every day making iConquerMS more awesome for the MS community. I have a goal and won’t stop working to figure out how to reach that goal until I do. So if you are on twitter be sure to follow iConquerMS using the twitter handle @iConquerMS; I talk about a lot of MS news, things that people claim to help them manage their MS, I ask questions to encourage conversation, and of course encourage you to join iConquerMS to participate in simple questionnaires that will help researchers answer some of the unanswered questions in the world of MS and maybe even help to find a cure for MS one day. Also, when a good conversation gets started it is usually a lot of fun to be a part of! You can also follow iConquerMS on Facebook by visiting https://www.facebook.com/iConquerMS/. See you there!

Matt Allen G

I was diagnosed with Multiple Sclerosis (MS) in 2010 at the age of 20. It's been a battle ever since and I have always shared my story and struggles online!

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