Monthly Archives: March 2017

Anxiety, Stress and Sleep

I am not sure if I have mentioned this before because sometimes I don’t like admitting stuff like this (even to myself) but for the last 2 years or so I have been going through a bit of an identity crisis, again… MS is continuously changing my life and every time I have a major relapse and I am left living with a “new normal”, I have to learn how to come to terms with the changes MS left me with as well how to adapt to them. Several times in my life with this disease, I have felt lost regarding my identity; who I am and what my roll in this life is. For example, I thought I was going to be a photographer. Photography was my thing. I did some work (like weddings), studied it every day, and even took a class on it. But after MS did some more damage that seemed to have stuck, I slowly lost interest and gave up that idea. All of a sudden I was not “Matt the photographer” so I did not know who I was besides “Matt the guy with MS”. So I focused on writing but with more time and more “permanent disability” it became less enjoyable especially when I was not sure what my “ultimate goal” was. It was really hard to not think “what is the point of this? What difference can I even make?”

Change in Medication; Maybe Zinbryta?

March is Multiple Sclerosis (MS) awareness month, were you aware of that? It is estimated that over 2.3 million people around the world have MS so I think it is fair to say that much awareness is needed and since you don’t really see commercials on TV about MS it is up to us as individuals to advocate and spread awareness about MS. I am not sure how much I can personally accomplish online but for the most part that is where I will be trying to do my part. I have never really done much for Multiple Sclerosis awareness month but this year I am going to try to make more of a difference in spreading awareness even if it is just a small difference. You may feel like you are just one voice and that one voice can’t make a difference but if everyone tries to make their voice heard then collectively we will all influence the conversation about MS online and in 2017 a conversation online is probably the best way for a message to be heard. Just think about how loud a chanting crowd can be; the spotlight of the internet is always pointed at what is making the most noise even if it just starts out as simple chatter on Facebook.