Monthly Archives: March 2017

LDN, Zinbryta, Ampyra, and More!

On Tuesday I finally saw my neurologist. There was just so much to talk about that I feel we missed some stuff but we still addressed a lot! We first tackled my lab orders and even though it is not a new order for EMSI (the mobile lab I use) I will be happy if I can just see my own labs even if that means going back to trying to get to a LabCorp every 4 weeks. We also got the clerical roadblock cleared for my Zinbryta. Kind of stupid though, they only send you 1 needle a month. I am not sure if I will have to jump through the prior authorization hoops every month or not so that will be interesting… I just want my first dose already!

What the Hell is Wrong With My Body?


Been Thinking About My Past Before MS

So first of all, the other day I sprained/twisted my wrist. Not sure that there was really an “event” that did it, it was more like a series of events. First, I think I slept on it weird so I started my day off with it kind of hurting. Later I was using a heavy battery-powered drill to put something up in my bathroom when my wrist just “gave out” but I didn’t lose my grip of the drill so my hand just sort of “fell limp” meaning the heavy drill in my hand sort of yanked at my wrist. This is when it really started to hurt but I still didn’t think it was that bad so I did not ice it right away but then I went to see a movie with my Dad and the entire time I was messing with my wrist (it was bugging me) and by the time I got back it was hurting so bad! So I wrapped it up (with one of those stretch band things) and went to bed thinking it would be fine by morning but nope, it hurt even worse. So I started the whole icing thing, used a splint to keep it immobilized and alternated between that and the wrap. It has been a few days and it is not as bad (I can kind of type now) but it still hurts when I move it too much so I am still wearing that splint. Fun…

Stimulants and Weight Loss? Duh!..

So I weighed myself yesterday as I have every few days to monitor my weight (same time and before I eat/drink to make sure it’s just me I am weighing not stuff in my stomach) and I am down another 5 pounds despite eating very particular food, planning my calories and other nutrients… What the heck! I thought I had at least stopped myself from losing weight! So once again I started to stress and worry (thinking about this and my constantly dropping WBC) which was not good to add on top of everything else I am dealing with right now. But I was sitting at my desk where I have all my medication laid out (so I don’t forget to take them) when I realized… whenever I am asked what medication I am on I typically only think about what I keep in my Monday-Sunday pill organizer thing but what about all the other pill bottles on my desk? Most of that is “as-needed” stuff like Temazepam for insomnia or Ritalin (methylphenidate) for fatigue. Ritalin. How did I never think of this? Ritalin is a stimulant. Stimulants cause you to lose weight! One of the main reasons I stopped taking Nuvigil!