A Weird MS Flare

I think I started to have a sort of flare on Monday night. I had a crappy day, nothing was going my way and I think that caused me too much stress. I started falling asleep watching TV and as I was getting up to turn everything off I noticed something weird. Because I was in that half awake / half asleep stage, both my eyes were not fully open. I stopped to notice that if I had my left eye open and my right eye closed everything looked dull like someone desaturated my vision a bit. Right eye open and left eye closed? Colorful! It was really weird. I have had optic neuritis flare up so many times since my diagnosis. My vision will never be the same again but this was the first time it had affected my vision’s color. Usually everything is just really fuzzy… I have even had episodes where while I am trying to fall asleep I would see quick/random flashes of white lights. Open my eyes? My room is empty, no sources of light but this? This was different than what I am used to.

All day Tuesday I just sort of felt “out of it”. My brain was just not working and even when I would try to use the voice to text function on my phone I would just speak jibberish, not even the wrong words, just sounds as if I had momentarily forgotten how to actually speak. It was really frustrating at the time but when I really stop to think about it? It is kind of scary! What if I were to completely forget how to speak? Before my grandmother died (we now know she had MS) she started having this issue. She eventually lost the ability to talk at all and this was attributed to a stroke. I was way too young to be able to question any of this but I can remember how hopeless frustrated she looked.  To KNOW what you want to say but not be able to put it into words…

Anway, I don’t know what this means for me; new lesions? Either way, it is pretty obvious I overdid it on Monday regarding how much stress I could endure. I tried to take it kind of easy yesterday but even today I just have a feeling of stress hanging over me, my vision/oscillopsia sucks, I feel really sensitive to sounds and my brain is just not ticking very smoothly (I CAN’T THINK!). I hate this, I can’t focus on anything! Hopefully this resolves by tomorrow because I just can’t deal with this right now, it’s throwing off my schedule!

Matt Allen G

I was diagnosed with Multiple Sclerosis (MS) in 2010 at the age of 20. It's been a battle ever since and I have always shared my story and struggles online!

6 thoughts on “A Weird MS Flare

  • December 22, 2016 at 2:49 am
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    Matt,
    Sorry to hear of the neuritis. That’s how my MS was diagnosed. It does go away as you know. I too have been “off” since Monday. Very, very fatigued. Can barely walk. Not 😴 due to severe spasticity. The holiday? Maybe it adds some silent stress and we show it physically. Please take care and just enjoy this season. Happy Holidays

    Reply
  • January 6, 2017 at 3:39 am
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    I am sorry you are going through this.
    I have MS
    THE PAIN is daily , some times horrendous
    First time I read NOISE BOTHERS some one with MS
    noise bothers me SPECIALLY Loud TV or IS it that I hear it louder than it IS ?

    Reply
    • January 6, 2017 at 3:52 am
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      I too have pain. I have terrible spasticity where my right leg bends and gets stuck. To straighten it is excruciating. It feels like the tendons in my shin are being pulled off the bone.
      I am also very sensitive to s loud tv. I read somewhere that that is common to MS sufferers

      Reply
  • January 8, 2017 at 1:31 pm
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    Hey, I just came across your page here. I was googling a symptom I’m probably experiencing from my own MS.

    I’m glad it is something. I’ll hopefully go speak to my neurologist soon about it.

    My eyes have been feeling super “shaky” and it’s super uncomfortable. Just makes me want to try sleep it off all the time. But it comes and goes.

    I hope to follow your journey with MS and have a place to go and converse about my own

    Reply
  • May 9, 2017 at 3:45 am
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    Hey Matt,
    First off I love how relatable you are! I know this was over a year ago (and I’ll keep reading to find out) but I hope these symptoms resolved. Secondly, this might sound naive but I didn’t know these symptoms came along with MS. Through all of my education on MS I have never heard of these which means what I’ve been taught is just scratching the surface. Your blog is great and such a great resource!

    Reply

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