It’s been a while since I have written anything here and this is going to be a short post but after my second round of Lemtrada I just did a few videos and rested – not that I was feeling terrible, I just wanted to let my body recover uninterrupted. This round was really easy compared to last year and within a week I was already starting my basic exercising back up. My skin is just all dry and a little bumpy from the rash and… that’s about it. I have also been sleeping OK so a break from insomnia is much appreciated!
Now, my vision and dizziness have been acting up since Lemtrada which is really confusing me. How is it that every other part of me is feeling better but this one aspect of my health is feeling worse? It’s weird because physically I feel like I am walking better; I even left the house without my cane yesterday which is the first time in a while that I have done that. I am doing much better on the Wii fit balance training stuff so clearly I have better control of my body BUT I feel like the further I try to look the more things shake around. Looking down the road from the passenger seat almost looks like it’s a hot summer day; the heat rising from the road disorients everything in the distance. I also feel like when I move my head too quickly or in any position that is not forward everything FEELS like it is spinning more violently. What happened to the whole “the brain can relearn to use new areas to compensate for damaged spots in the brain” thing? This is so annoying because I know everything would be so much better if this symptom (or set of symptoms) would just get a little better instead of worse. ARG!
Well, I am just going to focus on doing what I can do better and trying to get back into things that I know I can do but have just moved away from over the years. I started reading the other day, it’s difficult as far as visually and my reading comprehension, but I used to read a bit and now I do not. So baby steps. I am starting with “Of Mice and Men” because it’s the first thing I can remember having to read back in 9th grade. It’s not even a novel (it’s more like a novella) but I will work my way back up to the 1,00 page books from there. Before I was diagnosed with MS I was working on fictional writing, I started a novel and everything (what want-to-be writer hasn’t?) so I will slowly be getting back into that. Since it is cooling down I will also start messing with photography again since I really have done nothing with my camera all year! In a while, I also want to go back to school by which I mean, online classes. I am nowhere near ready to actually go back to school in person but I figure I can knock out a lot of my education online. I want to make sure that by time I am 30 I have at least one degree under my belt you know? So we will see how all of this unfolds, I want 2017 to be the year I turn my life around because 2016 just sucked!