I know a lot of you have already noticed this and signed up but I never really mentioned it. When I got a lot of work done on my blog I added a plugin called “BuddyPress”. When you are anywhere on my blog, scroll all the way down to the bottom and you will see a small section labeled “BuddyPress”. If you sign up you will be part of a mini social media, facebook-like forum. A lot of people have signed up but from what I can tell it does not show a list of members. It was sort of confusing at first but after you register, go back to the bottom of my blog and click on your name/profile picture (in the BuddyPress box) to bring BuddyPress up. There you can post “what’s on your mind” or comment on other people’s statuses. You can also set up and edit your profile. So if you haven’t already, register and then try posting or joining a conversation! Hopefully this will work out well enough that people can have conversations about MS without all their family and friends seeing what they are talking about, I get that not everyone has fully disclosed their MS.
When we scheduled my first round of Lemtrada we also scheduled my second round because it was supposed to be done one year later so why not knock it out all at once and make sure that I get round 2 right on time, right? Well since my first round my neurologist has moved to a new medical clinic which means I moved as well. Here is the problem; I was no longer on a schedule for round 2. My neurologist had emailed me a while ago instructing me to call the new clinic and get on the schedule. So I called and got no answer. I called again, left a message with the supervisor in charge of the schedule and… no answer. 3 weeks later, after more calls, more message, I still had no answer.
Spasticity is an involuntary (and constant) contraction of muscles and in Multiple Sclerosis (MS) this usually occurs in the legs. Though many people with MS can say they suffer from spasticity the severity can range from a minor feeling of tightness to painful spasms to an inability to move the legs well enough to walk properly. Many people commonly describe spasticity in the legs as a feeling of being stiff or rigid causing them to feel like they are trying to walk on wooden stilts. When occurring in the legs spasticity can also lead to lower back pain but though spasticity usually occurs in the legs it also occurs in the arms.
So I had been really depressed lately over things like feeling like “I’m literally wasting life”, I felt so inactive and like I just was not doing anything but wasting time! It seems my “dark passenger” was in the driver’s seat… Well, I remembered feeling this way before and what I did the previous time was make a list of every little thing I did, whether it was getting some cleaning done, scheduling an appointment or brushing my teeth; this way, at the end of the day I would have a list to look at so I could say “well hey, I guess I did get a lot done today”. After a few days of trying this out again I realized I was getting more done than I thought and that motivated me to try to get more taken care of!