I have not been feeling well… it has been so hot! I feel really dumb because for the longest time I was thinking my portable A/C just could not keep up with this heat because my room was hitting over 80 degrees with both my portable A/C and the house A/C! Turns out, I totally forgot that I am supposed to be cleaning out the air filter every 2 weeks or else it can’t run efficiently! I cleaned it out and yay! My room doesn’t seem to be getting above 74 (knock on wood). So hopefully that helps me not feel like total crap so I can do more than just sleep all day!

Yesterday I had a dental appointment. It was hot as hell on the way but hey, my teeth are nice and clean, I have no cavities (yay!) and they sent me home with a free toothbrush, toothpaste and floss; just like when I was a kid! Unfortunately, with my poor fine motor skills I can’t really use a regular toothbrush without jabbing myself in the gums and bleeding everywhere but I would rather have it and not need it than need it and not have it. By the way, I use an electric toothbrush.

On the way home we stopped at CVS; I was getting a text alert that I have had a prescription waiting for me to pick up. I couldn’t remember refilling anything but it has been hot and I can’t remember much of anything lately. After I paid and they handed me my bag I looked inside and damn… Hydroxyzine. It must have been on auto-refill or something because A) I don’t need it and B) I will never take that stuff again because it leaves me feeling drugged the next day, horrible! Oh well… Now I know to ask what it is before I pick it up…

Other than that not much else is new, my life has been very uneventful this year… I am simply looking forward to my neurology appointment at the end of July and then round two of Lemtrada in September. Oh yeah, I forgot to mention, my neurologist called me the other week to let me know he is moving to a new office that is about 30 minutes further away than his current office… This sucks because I left Colorado and came back here specifically to see him which means I am just going to have to drive a bit further! I am not switching doctors in the middle of a treatment plus it took me years to find a doctor that I trust and respect; I am not ready to give that up!

Matt Allen G

I was diagnosed with Multiple Sclerosis (MS) in 2010 at the age of 20. It's been a battle ever since and I have always shared my story and struggles online!

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