MS Has Been Kicking My Ass

Just when I thought this relapse was getting better it got way worse. Yesterday sucked, I was so fatigued; I felt weak, dizzy, my vision has been a little more blurry than usual, and my fine motor skills have been getting progressively worse making typing really difficult. Today I woke up feeling extremely weak, I didn’t even want to get up! But I woke up early as I slept pretty well last night; I took VESIcare last night and wow, it really does work better than oxybutynin!  I didn’t get up once to use the restroom last night! So I forced myself up. I don’t know why… So I went downstairs, watched the news for a bit and then went back to bed. I can’t explain how weak and heavy I felt, it reminds me off when I was little and had the flu; I just wanted to lie in bed limp.

Something I never really mention is how I am still in the “early” stages of my Lemtrada journey. I knew it was going to “get worse before it got better” but I had no idea it would be over such a long period of time! I am only about  36 weeks post, roughly about 9 months post-Lemtrada. I thought I would be a lot more stable by now but really? I feel like I have had some sort of flare every month or two! What the hell? I am so tired of this.. I just want some form of stability. At what point will Acthar stop helping me because I have used it so much since Lemtrada… Maybe after 1 year post-Lemtrada my MS will calm down… maybe…

I can’t write anymore, I am so tired and I feel like I am typing with my palms, I need to lie back down. I just wanted to check in before I go a week or two without blogging. Hopefully this relapses resolves soon. Take care.

Matt Allen G

I was diagnosed with Multiple Sclerosis (MS) in 2010 at the age of 20. It's been a battle ever since and I have always shared my story and struggles online!

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