OK, anytime I talk about any sort of MS issue with people the first thing they ask me is if I have had my vitamin D levels checked. I know they mean well but it sort of annoys me, having to explain over and over again that I know about the whole “people with Multiple Sclerosis, for whatever reason, have low vitamin D” thing. But how could they know that I know? So I need to chill a bit… it’s just me haha… I figured though, that I should post all my Vitamin D information up on my blog, I don’t have much but his is to show that yes, I have had my levels checked and I am working on it.
When I first had my vitamin D level checked (just a simple blood test) it was LOW. Normal range (LabCorp Testing) is 30.0 to 100. I was 18.7. My neurologist told me to start taking 4,000IU of vitamin D a day. 2 years later I thought “maybe I should check them again” and before I did my neurologist said I should also be taking B12 so I started taking a 5,000mcg pill once a week and a few weeks later I did my labs to check my levels. Wow! My B12 was high! Normal range is 211 to 946 and I was reading 1,521! I am sort of thinking I never needed it to begin with but I have no baseline. So obviously I cut that down, one-half once a week and we will see what that does on my next lab. After 2 years of 4,000IU a day of vitamin D, I am now only at 36.3… in range but still sort of low. So Now I am taking 8,000IUa day and when I see my neurologist I will see how much he wants me taking and when he wants to check my levels again.
I don’t think I really feel any different as a result of taking more vitamin D but obviously, our bodies need it and I am low so even if it does nothing for my MS I should still shoot for “normal” right? Then again, who’s to say that it’s not slowly helping me improve? Most things do not just happen after an hour of popping a pill and I am pretty sure no one feels a rush after taking vitamin D but I really don’t know. Either way, now you know, YES, I am monitoring and working to improve my vitamin D level as well as my B12. As labs come in over time I will keep everyone updated!