So I am still doing pretty well, it’s nice, to finally not feel the super Lemtrada fatigue and instead feel the normal MS fatigue which by comparison feels great. For the last 6 months or so I have been going to bed when I start “shutting down” (usually around 8:00pm) and waking up whenever I wake up (anywhere from 7:00am to 9:00am). Lately, I have been going to sleep at 8:00pm and slowly waking up at about 4:00am but not getting up till 5:00am (I am a morning person) and I haven’t felt like I am forcing myself up. Because my brain starts waking up around 4:00am, by the time 5am rolls around I am wide awake and “bored” of lying in bed.
I am getting a lot more done because of this; it’s easier to do “chores” when you are not so fatigued and I have been taking my dog for a walk in the morning and working on our garden. For the last 6 months or so I have really just been lying around watching TV trying to not fall asleep.
Now I don’t want to jinx myself but I sort of feel like my vision is starting to slowly improve, a bit, enough that today on the way to my medical clinic I imagined I was driving and the road didn’t look all crazy; I could see everything pretty clear as well as look behind me as if I was going to merge and I had no problems! So I will give it a few more weeks to either improve or remain stable and if all is looking good I might start practice driving next month! I don’t want to rush it though; I want to be 100% certain that I am safe to drive. Either way, if this keeps up, I will most likely be driving by my “goal date” which is in about 4 months.
Now really all I can attribute to my improvement is time and better sleep. I am going to change my diet again, which will be much easier now that I have been doing some basic cooking. So no fast food, all whole grains, no white bread, no red meat, turkey everything, lots of fruit (in the form of smoothies) and I will try to cram vegetables into everything I can. I will also continue to work on some minor exercises (basically just continuing to move in some way shape or form) and possibly start a CBD supplement (the non-psychoactive component of cannabis that seems to cure pretty much everything haha). If there is a possibility it will help and I have reasonable access to it I will try it, I want to keep moving forward because the life I have been living for the last 6 months or so? With this vision specifically? Well, it doesn’t feel like a “life”.
Right now I am at Starbucks down the street from my medical clinic waiting for them to open so I can take care of some paperwork and do my blood work. I was supposed to do it yesterday but since both my parents work full time the soonest I could get down here was this coming up Monday so I decided to just get dropped off here on my Dad’s way to work as he works down the street from my clinic. This sort of goes to show how much better I am doing because even just a month ago I would have just waited until Monday but now? No, I told them I would try to come in today to do paperwork so if that means hanging out here all day until my Dad gets off work that is what I will do because I am tired of not being able to stay true to my word or get to appointments early like I like to. I am tired of living on someone else’s schedule and though the bus is a horrible idea with my compromised immune system I will still do what I have to do to make things happen; I am patient so I do not mind at all just chilling all day. I get what I want and this is really much easier on everyone else so I do not feel like a “burden”. At the worst, it’s something different to look at than my 4 walls at home.
So we will continue to see how I do since this improvement was sort of “out of the blue” to me and with all the health changes I plan on making it should be interesting in the next month or two. I will (maybe tomorrow) also try to get all my Lemtrada labs uploaded because they are kind of interesting to look at. I am also going to order my MRI on a disk today so I will be uploading some of those images too. Lastly, I will be doing a new YouTube video soon to update everyone on my Lemtrada experience as I sort of (not surprisingly) dropped the ball on that one. So until then, take care!