Is This MS Pain? Trying to Get My Prescription

It has been a rough week or so… Maybe 2 weeks ago I was experiencing a sharp pain in the knuckle of my big toe (right foot). It felt like nerve pain but I just could not justify it as Multiple Sclerosis pain as it was in such a small and specific spot! But I had no other explanation as I had not stubbed it, there was no discoloration, bruising, or swelling. It didn’t even hurt when I pressed on it or bent it which tells me it is not an injury! The pain came in random pulses just like the nerve pain I have had in the past! It went away though so I didn’t give it much more thought but last night? It came back with a vengeance! It was so intense but once again in such a specific, small spot. It felt like someone was randomly squeezing my toe with pliers! This morning it is not so bad but the pain is still there. Now it only feels as bad as it did a couple weeks ago… But last night it was causing me to randomly jump as if someone snuck up behind me and poked me with a needle.

Because of this, last night I could not even sit still! I didn’t even want to eat dinner because the random pulses of pain were just too much! I can’t help feeling kind of lame though… Usually, any neuropathic pain I have had is in a much larger area – “My leg is killing me” so it feels really pathetic to say, “Oh man, my toe hurts so bad” but it really did/does and I do have a relatively high tolerance for pain so I am not just being a baby about it… Well, I was worried that I was not going to be able to sleep last night but 2 Norcos and some cannabis oil did the trick. Granted, I didn’t sleep great but I have not been sleeping well for weeks so it is what it is. All I know is that I should probably go in to have it checked out even though they will probably look at it, see nothing noticeably wrong and send me home with a bottle of Norco…

Speaking of prescriptions, Acthar. What a nightmare this has been! My doctor has always given me 2 vials which is 10 days worth of Acthar. After almost 3 weeks of calling both my specialty pharmacy and my doctor’s office, I finally got it… well… one vial that is… CVS said the prescription was only for one vial but then I called my doctor’s office and they said it should have been for two. So every day I was making phone calls to try to get that second vial without a gap in my treatment occurring. Well, I finished that first vial a week ago and they are barely getting me the second vial tomorrow… I am pretty sure if you did the first 2 days of a 5-day course of Solu-Medrol (IV steroids) and then the last 3 days a week later it would not work the same as if you did all 5 days in a row as intended and I imagine Acthar would be the same. I guess we will see… At this point though, I sort of feel like the stress of trying to actually get this medication will cancel out most of what it was supposed to do as stress is a huge trigger for me… It was never this difficult in the past, what happened? This has left me feeling like next time I just want Prednisone, I hate Prednisone but at least it would be easy and not require hours of waiting on hold and jumping through hoops to get.

Matt Allen G

I was diagnosed with Multiple Sclerosis (MS) in 2010 at the age of 20. It's been a battle ever since and I have always shared my story and struggles online!

2 thoughts on “Is This MS Pain? Trying to Get My Prescription

  • Pingback: I Think Am Starting to Feel a Bit Better | Matt's Multiple Sclerosis

  • March 25, 2017 at 3:04 am

    Matt, I have had needle pricks makes me twitch, sometimes to the point, where it so painful behind my thighs,bottom feet, toes, stomach, arms fingers, I don’t have MS but my aunt Sharon on my dad’s side had it when she was diagnosed she was 18 yrs old, I myself uses to scare my mom growing up she could not figure out why I was always in pain, she called it growing pains, I have had muscle aches, all my life growing up, needle pricks, still don’t know why, everyone just assumed it was growing pains.


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