Daily Archives: August 6, 2015

Lemtrada Coming Up – So Fatigued…

First of all I am sorry that I just have not been doing much writing, I have not been feeling great and you would think writing would be easy with fatigue but I can’t even think! So this will be short. Tuesday marked the 3-week mark meaning I only have 3 weeks till I can do Lemtrada (since you have to wait 6 weeks after the Zoster vaccination to do Lemtrada). I don’t have an exact date set for my infusion just yet but I am guessing it will be the week of the 31st so I can have a full work weak to get Lemtrada (5 days). I have been so fatigued lately, more so than I have ever been. I decided to play with Provigil some more; I am taking it every day for a week to see what happens since I never gave it more than 2 days. So far I am not entirely sure. There seems to be a “crash” regardless of whether or not it gives me any sort of boost. I think, at the most, I feel like I drank 3 cups of coffee at once. So at the least it is a lot easier to swallow one pill than drink 3 cups of coffee haha… Something else I am noticing is my legs are getting weaker. Maybe that is because I am sitting at the computer all day? I really only notice it when I walk up the stairs. For that moment in-between steps when I am on one leg it feels like I am going to collapse. I know I need to work that muscle out but I am just so tired! So we will see, I am trying to work some stuff out because I wanted to do as much as I could before Lemtrada so I have a better baseline to improve from. Unfortunately it feels like I am still slowly declining; vision, balance, strength, cognitive function, etc. Also, I saw that neuro-ophthalmologist again the other day. Waste of time if you ask me. All he did was spit out condescending remarks about optometrist who did the same test he wants to do (but obviously can not do them as well as he can) and how they are not a part of my medical team because they are doing nothing to treat my problem. I find that interesting because what is he going to do? Nothing… because there is nothing he can