OK, it’s official; IVIG is causing me miserable side effects. I was not sure if it was just a coincidence but after 3 time there is a clear pattern. For about 3 days after an IVIG infusion I seem to almost relapse. I am dizzy, my vision is worse and I am so fatigued! So not only does it screw me up but I don’t seem to have any positive effects from this treatment which is really disappointing. I think I am done. It’s just not worth it to me. After an infusion I am out for about three days! What if I would slowly be healing without it and it sets me back enough that I just can’t reach my target recovery? I don’t know? All I know is I am trying to reduce my dizziness and improve my vision but after I finish an IVIG infusion I get more dizzy and my vision gets worse. Somewhat counterproductive wouldn’t you agree?
I am going to ask my neurologist about plasmapheresis. “Plasmapheresis is a process in which the liquid in the blood, or plasma, is separated from the cells. In sick people, plasma can contain antibodies that attack the immune system. A machine removes the affected plasma and replaces it with good plasma, or a plasma substitute.”That is the only thing I can think of that I have not tried yet… At this point I really have no faith in any treatment improving my health… I think it is entirely up to me and life style changes. I do want to see a neuro-ophthalmologist and an optomotrist. Even if they can improve my vision by 1% I will be “happy”. I am continuing to try to strengthen my body so maybe I will see some improvement in balance or at least an increase in my energy levels.