Met With an “MS Friend” & My Coffee Habit

Yesterday I met up with an MS friend of mine who I have met in the past. She is just a tad older than I am and does not live too far away so we met for coffee (her brother who is also named Matt drove her). It was nice to talk to someone in person who you have *something* in common with, someone who understands what your talking about when you describe the weird MS stuff that to most people is indescribable. Meeting up was a bit tricky due to some GPS issues but eventually we were all in the same place and it was nice.

I learned something that day though… my coffee habit is once again getting out of control. You see, before I was diagnosed with Multiple Sclerosis I worked next door to a coffee shop. I went there every day, sometimes twice a day. I would have coffee before work, write, read, go to work and sometimes go right back for a while. They all knew me by name, in fact, I would walk in and not even stand in line to order a drink. They just knew what I wanted and would start making it up for me. I started getting close to a girl who worked there and I remember helping her rearrange the shop once… Good times…
After I was diagnosed with MS I stopped drinking coffee because the caffeine was really bad for my restless leg syndrome (RLS) and cutting the coffee cold turkey (when I drank as much as I did) caused the worst withdrawal head aches ever! Once it was out of my system I did well and stayed away from coffee for years. In the last few months I have been drinking coffee again, it just helps me with so many things that medication just doesn’t. Here is the thing; I started off with one cup every other day and just one teaspoon of the instant stuff (I know, I know, instant…). Then it was two teaspoons… then it was everyday… Now it’s 2 and a half teaspoons everyday and if I don’t drink it I feel so tired! I was afraid of this…
Yesterday I tried skipping my morning coffee and I went to physical therapy. I was so tired I had to leave early! When I met up with my friend at a coffee shop I told them I needed the strongest stuff they had. They made me what they called a red eye something… Red eye? If it helps people on horribly late flights that should help me out right? It was so nasty! Black and strong! I added probably 4 sugars, coco powder, vanilla, everything I could. I finished it and I barely felt “neutral”. Oh man this is so bad. I really did not want this to happen but I would rather this than the Nuvigile! Coffee doesn’t give me the shakes anymore and no headaches but still… Dependency sucks
Oh, random, but I am noticing I am walking a little more steady. I can walk with a glass of liquid (not all the way full of coarse) without it spilling all over the place! So that is good. Go physical therapy!

ALSO; I added a new page I am working on with pictures of everywhere I have traveled since my old neurologist basically told me I would be living in a wheel chair. Proved her wrong! CLICK HERE or click the tab called “My Travels” on the top of my blog!

2 thoughts on “Met With an “MS Friend” & My Coffee Habit

  • April 27, 2014 at 12:36 am

    Hi Matt, I'm one of the OT students that got to hear you share your story in class. In reading your post, I was wondering did coffee or the caffeine in the coffee ever have bad reactions with your medications, past and present, and does it help at all with the MS fatigue? Also, on a more random note, do you think tea would have the same effect on your RLS?

  • April 27, 2014 at 3:47 pm

    Hi! Cafeine only effected my RLS years ago. I don't have it anymore (yay!). Coffee takes the edge off at it's BEST, and I don't like tea but probably :p


Leave a Reply