Monthly Archives: October 2013

Happy Halloween! Gym, Acthar, Georgia, and Computer

Look How Far I Have Come – Time to Slow it Down

I have been thinking a lot these last few days… I have been depressed over some stuff and fed up with my financial life. I am so sick of opening my bank statement to see “-64.62” and after I “fix” it I have a whopping balance of “$0.01”. I miss making over $1,000 a month; making a grand total of $750-$800 a month on SSI (benefits) is no way to live and sometimes it’s not even enough to survive. I am not sure how I will manage but I want a job. I need a job. There are people way worse off than I am who can do it so I should be able to do it too. It’s won’t be easy finding someone who will work with my MS when I am competing with people who can offer twice as much as I can but I told someone earlier today that “you can’t fail until you try” and then I realized… for me to give that advice out right now is very hypocritical.

The Temperature is Falling – Tysabri #9

 It’s that time of year, the time I love, summer is trying to hold on the best it can but winter is slowly kicking it out of the day! So remember, not too long ago it was already 80F (26C) outside when I woke up around 5:30am… too warm for a walk even before the sun came up. Now? It has been about 45F (7C) when I head out around 7:00am! It stays pretty cool for most the day and then it peaks around 85F (29C) mid day. I cleaned out my room the other day and rearranged it completely; along with the new set up giving me more space, the fact that I put my air conditioner in storage helped as well! It is so nice to not need the A/C and to be able to keep my windows open for most the day letting fresh, cool, air flow freely on through my room.

Post Cards – Why I Fought

I sort of touched on this the other day but let me share something with you I only intended on posting on Facebook. When ever I travel I send a post card to my old neurologist who would not give me Tysabri and who told me to just get used to the wheel chair. Last time I just wrote “-Tysabri” on the card but this time I put a small message since I not only went to Ireland AGAIN but also Slovakia. Like I said the other day, because I faught and pushed for more than what she wanted me to settle for, I have seen things most people never will, I have done so much and am continuing to do so.