Expanded Disability Status Scale (EDSS)

The Expanded Disability Status Scale (EDSS) is basically used to measure a patient’s level of disability between 0 (no disability) and 10 (death). It was created in the 1950’s and refined in the 1980’s and has been used for the last 4 decades or so in almost every major clinical trial related to Multiple Sclerosis. The above image is very vague but the scale below is much more detailed and accurate so go by that one.

0 —-Normal Neurological Findings—-
1.0 Full Ambulatory None
2.0 Full Ambulatory Minimal disability in 1 FS
2.5 Full Ambulatory Minimal disability in 2 FS
3.0 Full Ambulatory Moderate disability in 1 FS or mild disability in 3-4 FS
3.5 Full Ambulatory Moderate disability in 1FS and mild disability in 1 or 2 FS or
moderate disability in 2FS or Mild disability in 5 FS
4.0 Able to walk without rest or aid for about 500 meters Self-sufficient, active 12 hours daily despite relatively
severe disability
4.5 Able to walk without rest or aid for about 300 meters Active much of the day, may be able to work a full day, may
require minimal assistance
5.0 Able to walk without rest or aid for about 200 meters Severity of disability impairs full daily activities
5.5 Able to walk without rest or aid for about 100 meters Severity of disability impairs full daily activities
6.0 Requires intermittent or unilateral constant assistance to walk
about 100 meters with or without rest
Severity of disability impairs full daily activities
6.5 Requires constant bilateral assistance to walk about 20 meters
without rest
Severity of disability impairs full daily activities
7.0 Unable to walk beyond 5 meters without aid – Restricted to
wheelchair but can self-propel and transfer alone
Active (in wheelchair) about 12 hours daily
7.5 Unable to walk more than a few steps, even with aid.
Restricted to wheelchair, with limited ability to self-propel
Unable to spend a full day in a wheelchair
8.0 Unable to walk, even with aid. Restricted to bed, chair, or
wheelchair
Retains many self-care functions and effective use of arms
8.5 Restricted to bed for much of the day Retains some self-care functions and some use of arms
9.0 Restricted to bed Able to communicate and eat
9.5 Totally helpless and bedridden Unable to communicate effectively or eat or swallow
10 —-Death Due to MS—-

4 thoughts on “Expanded Disability Status Scale (EDSS)

  • August 2, 2013 at 3:18 pm
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    Great post. I always wondered about this. I think im a 1…

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  • August 2, 2013 at 5:56 pm
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    Yeah it's good to have, I was around an 8/8.5 but now I am probably around a 2/2.5, 1 is my goal of course haha

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  • May 16, 2014 at 7:24 pm
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    This is interesting. I go up and down between about a 2 and a 9. I wish I could predict a little better how things would be so I could arrange child care or other helpful things in advance instead of trying to find help at the last minute because I woke up and couldn't walk that day.

    Reply

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