I can’t get over this, I would never have called this hot, I would say it’s “ok” outside but ever since I went to Ireland and experience “non-desert” temperatures, it’s like my mental idea of hot and cold got reset. Now I am noticing what the temperature is doing to my MS, just adding a little warmth to my body and my Multiple Sclerosis symptoms are flaring up. I would have never noticed this change to be related or triggered by anything, I would have just said that MS and time were doing it’s thing to me but no, MS and temperature are working it’s black magic on me…
The number one thing I have been noticing is I feel dizzy, now there are many kinds of MS dizziness, so this one feels kind of like a “light headed” dizzy as in, turning my head, looking around, getting up, and things like that, makes me feel like I am going to loose my balance. Once again I feel like I have to work a little harder to take each breath. My noise sensitivity is on the rise, fun. Dizziness aside, I can tell my balance is not so great and all of this is effecting my walking. My gate is not as “clean” and I am getting tired after just a mile, a mile and a half I am dying, much less than the 5 plus miles I could walk in Dublin without feeling anything negative. My fatigue is once again destroying me, I just want to sleep all day, I am just so tired! I still try to walk, in fact, I got my dog to finally feel ok on the leash, she used to just lays down as soon as I put it on so I couldn’t move her, I thought this would make walking more fun, but I was so tired today… All this is making it hard to think and I have been so clumsy in fact, I knocked a glass of water onto my laptop, so trying to keep it from frying AGAIN, that was all the fun I needed for the week!
I did start Acthar again today, so hopefully that helps in the next couple of weeks. They always send me 25G5/8 needles but this time they sent me those AND 23G1 needles which when I opened one to compare I realized, I will never ever use those! They are huge!
You can’t see it in the picture but they are also thick! I imagine it feeling like stabbing myself with a steel straw! No thanks!