This Heat Is… I HATE IT!

I can’t get over this, I would never have called this hot, I would say it’s “ok” outside but ever since I went to Ireland and experience “non-desert” temperatures, it’s like my mental idea of hot and cold got reset. Now I am noticing what the temperature is doing to my MS, just adding a little warmth to my body and my Multiple Sclerosis symptoms are flaring up. I would have never noticed this change to be related or triggered by anything, I would have just said that MS and time were doing it’s thing to me but no, MS and temperature are working it’s black magic on me…

The number one thing I have been noticing is I feel dizzy, now there are many kinds of MS dizziness, so this one feels kind of like a “light headed” dizzy as in, turning my head, looking around, getting up, and things like that, makes me feel like I am going to loose my balance. Once again I feel like I have to work a little harder to take each breath. My noise sensitivity is on the rise, fun. Dizziness aside, I can tell my balance is not so great and all of this is effecting my walking. My gate is not as “clean” and I am getting tired after just a mile, a mile and a half I am dying, much less than the 5 plus miles I could walk in Dublin without feeling anything negative. My fatigue is once again destroying me, I just want to sleep all day, I am just so tired! I still try to walk, in fact, I got my dog to finally feel ok on the leash, she used to just lays down as soon as I put it on so I couldn’t move her, I thought this would make walking more fun, but I was so tired today… All this is making it hard to think and I have been so clumsy in fact, I knocked a glass of water onto my laptop, so trying to keep it from frying AGAIN, that was all the fun I needed for the week!

I did start Acthar again today, so hopefully that helps in the next couple of weeks. They always send me 25G5/8 needles but this time they sent me those AND 23G1 needles which when I opened one to  compare I realized, I will never ever use those! They are huge! You can’t see it in the picture but they are also thick! I imagine it feeling like stabbing myself with a steel straw! No thanks!

8 Responses to This Heat Is… I HATE IT!

  1. Anonymous says:

    So, have you ordered your cooling vest yet??


  2. Anonymous says:

    clumsy yea…I fell down the front steps, all 20 of them, slammed my shin into edge of step while I was taking a header….just more MS fun in the sun…. so you say Ireland is the cure? ok calling my travel agent now


  3. Anonymous says:

    youtube search for drying laptop, phone whatever. think you just put it in a bowl of rice or something


  4. Matt Allen G says:

    Haha 20 steps? DID YOU BRAKE SOMETHING???

    And yeah, I dried it, bowl of rice or you put baking soda in a bowl, put a paper towel over it, then your phone on that, then seal it with a lid, leave it for a few days, trust me, I am experienced here haha

  5. Anonymous says:

    don't really know. I assume not. You know how much justified fear of docs & hospitals I have…. my shin hurt real bad when touched for looong time. this happened almost 2 weeks ago. just now starting to hurt less. few months ago I was in a roll over car accident (as a passenger – stoodpid roomie driver ), screwed up my wrist bad. cant blame that one on MS tho lol. did a video on it


  6. Matt Allen G says:

    serious? IDK why I didnt see it, send me a link?

  7. Anonymous says:

    just see it on my YT channel lol. was damn lucky I didn't get killed.


  8. Matt Allen G says:

    Haha I need a link boss

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