I Drove a Car Today! Stem Cell Money

Yes, a car, a motorized vehicle, not sure what else I would be driving haha. Even though I have driven before since rehab, this still feels like a first, I’m not sure why, maybe because I hardly remember that last time (I drove)? Either way, it felt, somewhat normal… I mean, I am not used to it so I could tell I was overly conscious, as in, I didn’t want to look away from the road for even a second to check my speed, so it will take some time to get comfortable I suppose. Otherwise I felt like everything related to my vision and body’s response time was fine! I drove to the store with my Dad to pick some stuff up, then we went to pay and I realized… I forgot my wallet… So, since I did not have my drivers license on me I let my Dad drive home, I’m not one to take risks like that anymore. I got to see how it felt and that’s all I really wanted for today, now it’s just a matter of getting some drive time in so I can get comfortable driving around again, that will simply take some time and experience. So weird… I used to be so good at driving, riding motorcycles, it all just felt natural, like the vehicle was an extension of me, but now? It’s kind of foreign haha… I think I just have not done anything that requires me to “be on my toes” for such a long time that my brain got too relaxed and now I am requiring much more of it!

On a separate note, I have to start looking into BG-12 and Gilenya so that once it comes time to leave Tysabri behind (I don’t want to be on it too long as it will increase my chances of contracting PML) I will know what I want to switch to, to keep me stable that is. Tysabi is doing a great job of getting me over the “hump” created by my last relapse but that’s all I really intended to do with it. I know some of you will disagree with me, but I don’t want to stay on it, I want to see if something else will simply keep me from relapsing since I have obviously done a good amount of reversal. We will see, one step at a time, no rush!

Oh yeah, I almost forgot, I will do a more official post solely on this topic, but that money I raised for the stem cells is still there, in it’s own account. I am obviously not going to be going for stem cells, so I think it’s just going to stay there in case something health related, or, MS related comes up. I am thinking how ever (maybe I will post a poll asking about this) that perhaps it would be wise to invest in a cooling vest since I do live in the desert and 110 degrees Fahrenheit (43 degrees Celsius) is not good for MS and I am scared it’s going to do some real damage to me this summer since heat and stress seem to be my main triggers… It’s already starting to get warm here… So what do you think? I will post a poll to try to get the opinions of those who donated, I want to make sure they are OK with that, otherwise the money will stay in that account.

12 thoughts on “I Drove a Car Today! Stem Cell Money

  • April 11, 2013 at 2:54 am
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    Matt, take it gently and easily – you are so young, you've still got plenty of time. (Hey, I turned fifty on the 9th of April, I have many years of something approaching wisdom.
    By the way, I'm loving Gilenya! On it for about a year, and feeling pretty good!

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  • April 11, 2013 at 3:31 am
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    Haha I am trying, as patient as I am, I am still impatient haha…. But yes, I will look into it ask what my doctor thinks about it, i trust him.

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  • April 11, 2013 at 2:28 pm
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    Please let me know if you change and how its working for you cause I'm also on Tysabri, I'm doing my 5th infusion tomorrow, so far its been great the weather has been back and fourths it was 91 yesterday and frost last week.Too hot strains me and too cold does.Good luck with all.

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  • April 11, 2013 at 3:03 pm
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    I just did my fourth, would have been my 5th but I skipped a month when I went to Ireland. I will definitely be sharing that here!

    That link wont open for me, I was looking at this http://www.stacoolvest.com/vests.php
    because I need something tight to keep the cold as close to my core as i can

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  • April 11, 2013 at 7:22 pm
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    Mymssa.org
    How msaa can help
    Cooling Cooling and assistive equipment

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  • April 11, 2013 at 8:23 pm
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    This link is taking me to a website for someone who helps you get SSDI or SSI, I dont see anything on "How msaa can help" or cooling vests πŸ™

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  • April 11, 2013 at 9:45 pm
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    Hey Matt… Have you ever tried or considered betaseron?(DMT) I've been on that since diagnosed and been great, no relapses( minor ones but nothing serious).

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  • April 11, 2013 at 10:28 pm
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    I was on Rebif which is alo an interferon but I did horrible on it, and since Betaseron, Avonex, and Rebif are all interferons there is no point in me trying a different one, they are pretty much all the same from what I have heard…

    Reply

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