Tysabri Infusion #3 – Getting Easier

 photo tysabrinumber3_zps4fc87818.jpg 

Today I had my third infusion of Tysabri. My neurologist made note that “this stuff hasn’t even kicked in yet” and I am doing so well, so I think I will continue to see improvement so long as I keep working at it all. I think he put me at a 2.5 on the disability scale he uses which is better than I thought I would ever be, 2.5 is basically “not disabled”, so that makes me happy! I am SO glad I stopped seeing Dr. Sagert!

So I did not take the Benadryl via IV before my Tysabri today and I did just fine; I had no itching and since I didn’t take the Benadryl I did not knock out all day! Since I am going to Ireland at a weird time I will be skipping my March infusion and getting one as soon as I get back in April, I think I will be just fine, I read somewhere that the FDA was questioning the effectiveness of an infusion every month vs an infusion every other month and I think they were saying they see no difference. My doctor did not seem to be worried so I think everything will be A-OK! Oh yeah, I also did not have to stay an hour after for observation, which was nice! I hated waiting around to go home! Nice n’ quick, just the way I like my medical experiences!

Either way it’s a million times better than sticking myself with a needle every day!

7 thoughts on “Tysabri Infusion #3 – Getting Easier

  • February 13, 2013 at 9:35 pm
    Permalink

    I'm glad to hear that you're doing better. It's great to hear some good news. I always thought you switched gears too often. Stick with the Tysabri and your exercise and continue to be positive.

    Alex

    Reply
  • March 13, 2013 at 4:00 pm
    Permalink

    I GET MY 3RD TYSABRI INFUSION THIS FRIDAY, IT SEEMS LIKE IT HELPS BUT THE WEATHER HAS BEEN FUNKY SO THIS PAST MONTH HAS BEEN ROUGH. IS THERE CERTAIN FOODS YOU AVOID?I FIND EXERCISE HELPS KEEP IT UP

    Reply
  • March 15, 2013 at 11:45 am
    Permalink

    I avoid dairy and reduce red meat. No junk food and no soda, but really, I don't feel that sensitive to food anymore, oh, I do seem to react poorly to alcohol now, I don't get drunk, just feel my symptoms flare haha.

    Reply
  • May 6, 2013 at 3:03 pm
    Permalink

    I am starting Tysarbi on Wed. I've been very nervous, glad to see you are doing well, it gives me hope 🙂

    Reply
  • October 1, 2013 at 5:22 am
    Permalink

    my dad took this for 2 yrs and a month after his last treatment he had gotten in sept 2012 he was hospitalized in October 2012 for a little over 2 months and passed away the day before Christmas 2012 because he had set up PML caused from this treatment…so to you all taking it PLEASE be careful with it and don't hesitate to ask your doctor questions and we did ask question and was told it was very rare that anyone setup PML taking these treatments but the good lord chose different for my father….

    Reply

Leave a Reply