Today I had my third infusion of Tysabri. My neurologist made note that “this stuff hasn’t even kicked in yet” and I am doing so well, so I think I will continue to see improvement so long as I keep working at it all. I think he put me at a 2.5 on the disability scale he uses which is better than I thought I would ever be, 2.5 is basically “not disabled”, so that makes me happy! I am SO glad I stopped seeing Dr. Sagert!
So I did not take the Benadryl via IV before my Tysabri today and I did just fine; I had no itching and since I didn’t take the Benadryl I did not knock out all day! Since I am going to Ireland at a weird time I will be skipping my March infusion and getting one as soon as I get back in April, I think I will be just fine, I read somewhere that the FDA was questioning the effectiveness of an infusion every month vs an infusion every other month and I think they were saying they see no difference. My doctor did not seem to be worried so I think everything will be A-OK! Oh yeah, I also did not have to stay an hour after for observation, which was nice! I hated waiting around to go home! Nice n’ quick, just the way I like my medical experiences!
Either way it’s a million times better than sticking myself with a needle every day!