Sorry! I disappeared again, this week was rough but not because of my MS. I had a bit of an ear thing going on but I went to the doctor’s today and it’s all better! So anyways, much catching up to do… Monday was my second Tysabri infusion! That took up an entire day, the ear thing just made me miserable, and oh yeah, I have some photoshoots lined up, so that kept me busy this week because I had to fix up the ol’ website after all!
First, let’s go over Monday, the Tysabri infusion. So I saw my neurologist right before my infusion and he was impressed with my recovery progress because “the Tysabri has not even really kicked in yet”. So that made me happy! He put me back on Baclofen for spasticity and is sending me another round of ACTH so hopefully between all this I can improve much more! It’s crazy how far I have come this year, I remember feeling hopeless, but all it took was a new doctor, nothing extreme, and now I am like a million and two times better! I want to send my old neurologist a letter, she said “How ever you are in 6 months is probably the best you will get”. Yeah, ummm… WRONG!
So I walked into his office without a cane and knocked out all the usual tests with no problems. I think he said that I am at about a “2” on that disability scale now. I forget the name of the scale but “2” is “Full Ambulatory / Minimal Disability in 1 Functional System”. It sounds like he expects to get me to a “1”, “0” is “normal neurologic examination finding” and I doubt I will ever be there again, but a 1? That would be more than I ever could have imagined! A “2” is great though, Considering I was around a “6” or “7” before!
So the infusion went well, 5 minutes on Benadryl, 1 hour of Tysabri, then a 1 hour observation period. I can’t wait to not get Benadryl and no longer need that observation period. I don’t like being sleepy and I don’t like sitting and waiting but both at the same time? Drives me nuts…
The first time I got that Benadryl it knocked me out but this time? I did not fall asleep really, not till I got home and ate… then I realized I was exhausted and I knocked out. I pretty much slept the day away. Then for the next few days my ear was bothering me and I was just tired… I got my ear “irrigated” today and now I feel good! Two days ago I smashed my heel with my chair which hurt really bad but now it feels fine! Yesterday I needed to be outside so I dug up the base of a Bird of Paradise Tree in our backyard. It was in there good but I got it out and it is so nice to not have an ugly dead trunk sticking out of the ground!
So yeah, I have been trying to keep busy and since I went ahead an booked a few photo shoots I have been really busy! I had to redo my website which took for ever! Why do I always forget how much I hate HTML?? The website is pretty much done for now and I have 2 shoots and a wedding between now and the end of February, so this will pay for some of my trip to Ireland and a new camera since my old one… well… it has seen better days haha. I never thought I would shoot again yet here I am booking shoots. Who knows where I will be in another month, 6 months, 1 year! I look forward to this all!