Yearly Archives: 2013

Merry Christmas and Happy Holidays!

Tysabri Infusion #11

Yesterday (12/12/13) I had my 11th infusion of Tysabri. The accidental told the machine to infuse it over 30 minutes instead of 1 hour and they were all freaking out telling me not to worry. I didn’t know what the big deal was so I kept saying “I am fine, not worried” but still they were all worried; “We already contacted your doctor” blah blah blah. Anyone know what the possible danger in infusing Tysabri too fast is?

Fatigue, Balance, Spasticity, SSI Benefits

What a week… What… a… week… I guess we can start with my SSI benefits (Social Security Income). I got a letter in the mail informing me that I had to go to a “meeting” to review my SSI eligibility; in layman’s terms? They wanted to have me come in so they could find a way to deny me. I had to bring in bank statements for the last 6 months and once I printed them out and reviewed them I started stressing out over stupid stuff I was sure they would try to deny me for. “I see you have been to Panda Express a few times, if your spending money on eating out, then clearly you don’t need benefits”. Plus there were a few transactions from my travels I did not hide very well with the ever so untraceable cash… On top of that, I imagined they would take one look at me and assume “well you look OK so you must not have any type of disability” as most people assume regardless of the fact that cognitive disfunction, fatigue, and vision loss do not turn me bright blue to indicate something is wrong.

Percocet (Oxycodone/Acetaminophen)

=&0=& Used to treat moderate to severe pain. This medication is a Schedule II narcotic.

Brand Names: Percocet, Roxicet, Endocet, Xolox, Tylox, Primlev, Magnacet