Feeling Better But After This Who Knows…


So far I feel pretty good
today. I did not sleep great last night which I think is because I no
longer have a fountain running at night for white noise. When I wake,
I am awake, it’s so hard to fall back to sleep… I did get a new
fountain the other day but I bought a cheap one and did not realize
it was battery operated… No wonder it was cheap… Not sure what I
will do because apparently it does me a lot of good but the batteries
do not last. Music is too distracting and my TV turns off after 1.5 –
2 hours (also have a towel over it to block the light). I will figure
it out, maybe I can wire a plug to it if the voltage is right… Not
sure I have the fine motor skills or patients for this kind of task
anymore but we will see haha. By the way, anyone know the grammatical
difference between “He is a patient person” and “He is a
patient at that hospital”? Are they spelled the same? I thought so
but now I am second guessing again.

So let’s see, I have been
trying to get around the house without using my cane again. I think I
am doing a tad better, I feel like my steps are stronger and more
controlled. That is of course after much stretching and some Baclofen
(which I do not think helps much but I still take it just in case).
So I am just doing more tweaking to my exercise routine, I still need
to post my exercise log, well, perhaps.
My vision has me thinking
as well… So the double vision has been gone for a few weeks. That
turned into minor ataxia. Now it’s just slightly blurred and I am
dealing with that same old blind spot that never goes away (in my
left peripheral) and probably never will. I have an appointment on
Friday to see an optometrist about new glasses. Now I am kind of
thinking I might not need new glasses because I had not worn them in
about a week but popped them on yesterday just to see how they
effected my vision and everything looked good. It was slightly blurry
for a while as if I was wearing someone else glasses which is why I
stopped wearing them. Now it feels right, I am typing better and
realized that I was not using a huge font to type this. I still want
to go in just to see what the doc thinks but I doubt I will need new
glasses. I am still going to wait to drive till after my appointment,
the blind spot is really the only issue now but there is nothing they
can do for that so I just need to re-train myself to shift my eyes
while I drive to compensate. Was not an issue before but not used to
doing that anymore you know?
I was pretty stressed
yesterday for many small reasons but what topped it off was all the
stupid kids at college. Just a bunch of high school kids who are
going to middle college because they can not get jobs and their
parents don’t want them home. It is so rowdy now, cussing, laughing,
yelling, screaming, people acting like little thugs, throwing
footballs around inside the dining room, playing music on their
laptops full blast for everyone to hear, sitting on tables, I hate
it! I was going mad! I guess it’s my fault, I thought RCC was a
college but clearly it’s a daycare, high school part 2. ARG! Then the
cherry on top, I got a call from my doctor’s office, they want to
start my Tysabri but apparently we did not reach our deductible with
our insurance company so we have to pay $350.00 for that and pay 10%
for the medication which they said is about $1,000.00. That ruined my
day. I can not afford 1,000.00 a month!.. I just… I do not know
what I am going to do, I was so looking forward to this, and now, it
looks like I am just out of luck. I don’t want to bring up politics
but if Romny wins tonight I may has well leave the county because if
he kills “Obama Care” that’s it for me, I would be dead if not
for that bill, I can’t afford to LIVE without insurance, but again,
not going to get into that haha… Still going to look into a few
other options but I don’t know, we will see.
Got to go, day just fell apart, sorry, will
finish tomorrow I hope.

6 thoughts on “Feeling Better But After This Who Knows…

  • November 7, 2012 at 3:38 am

    I noticed how you started off this entry. You actually said, you feel pretty good so far today. That is amazing, cause stating that first is a very good sign. I know that not everything is good, but there are times, when you are experiencing "pretty good". AWESOME

    For sleeping, maybe look into getting a "white noise" machine used by our baby population. My grandson has that going on and it works. His particular one is birds, like real birds tweeting and when I listen to it, I wait for the "loop" and there isn't one! Cool.

    I am so lucky because at this time of year, the creek that runs beside our house is rushing by and I can hear the creek, when I open my window in the bedroom. Right now, there are a few salmon swimming up to spawn and every once in a while I hear them struggling to fight the current to spawn. They make it a few feet upstream, then the small current is too much, and it pushes them back and then they have to start the struggle all over again. (hmmmmm…..sounds familiar)

    A comment on what you experienced at college…….what you are describing is so sad, there are way too many people out of touch from what counts….for whatever reason, those people are lost and I hope they find their way. I hate stuff like that too. What is the point, really, of cursing, yelling, playing like a two year old, when you are in charge of your own future.

    It would be hard for me to be in that situation, cause I'm so not like that. I'd feel isolated just because of my sense of decency and respect for others. That's too weird.

    Money doesn't buy happiness…but it sure allows options. I will pray that money will come your way!

  • November 7, 2012 at 10:17 am

    Hi Matt!
    Just found your blog as I recently got diagnosed with MS and looked everywhere for a information. I am 32 o/m and used to have really good life (wife, work, house etc). Now I am little bit confused but your blog gave me a lot of energy to focus on right things for now (dieting, exercises and so).

    I have one question though, since it bothers be much – what do you think about your cognitive skills? I understand that short term memory and focus going to deteriorate but what about general intelligence? Do you feel as smart as you were? May be you can write a post about it – cognitive skills. That would be really interesting.
    Mad props to you for doing so well.

  • November 7, 2012 at 4:14 pm

    I like your Blog. Just found it. My partner was recently diagnosed with MS.
    Go to this link http://www.sleepphones.com/mp3/free-mp3-downloads
    You can download the waves and burn on a cd. Put your player on repeat.
    Should keep you sleeping.
    I bought glasses online from zennioptical.com They are a fraction of what you pay an eye doctor, and I like them. If you need prisms try optical4less.com My partner Joe bought his there and they are also good glasses at a fraction of the cost. All you need is a written prescription from your eye doctor.

  • November 7, 2012 at 4:36 pm

    1) patient is an adjective
    2) patient is a noun

  • November 8, 2012 at 2:54 pm

    Dear Matt, I wrote once shortly after my own diagnosis. I am the doctor who wrote when you were having such a bad time with your previous neurologist.I am glad you have a good neurologist now. I am on Tysabri. I got my first infusion a few days ago. I had to do a few months of Interferon to "qualify" for Tysabri which is only covered if you try and "fail" something else first. However, I wanted to tell you Tysabri has an excellent patient assistance program for exactly your kind of problem where they will cover your out of pocket costs(you only have to pay 10 dollars I believe) and they take whatever your insurance will cover. They should have all that information at your doctors office or you can contact the company directly through their Touch program. Good Luck! Tysabri is a TON better than Interferon I have to say. I feel SO much better!

  • November 8, 2012 at 6:53 pm

    You know what… Check for a new post today, trying to write it, hard, u will get it once u read it.

    Oh and I think I have two posts on cog issues under learn/symptoms

    And TY "ThinMan" haha


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