And the Recovery Slowly Begins



 EDIT: 11/17/12 6:05 pm Pacific Time Zone)

how am I doing today you ask? Well not much different… My
difficulty walking I can now tell is due to sever spasticity, it is
so bad that it is making my right foot want to pull outwards. I keep
getting stabbing sensations as if my muscles were tearing, very
unpleasant. Bladder issues have resolved thankfully although my kidney still hurts like heck… Hurts to twist, move, apply pressure, breath deep,
etc which is making stretching/working out impossible.  Starting all over sucks when I have put so much work into working out in the last few months, but there, now you know why I am no longer as well as I was a few posts ago.

am trying to exercise/stretch my legs, since the Baclofen is a waste,
but they are so tight, it’s so hard and I am not sure if exercise is
helping or hurting me… I want that Botox so bad, I can’t wait to
see what my doctor thinks about this… I was walking without a cane
for two days and now I am back in the wheelchair, I am so mad, well,
when I think about it, but I am trying to stay as calm as can be as not
to aggravate my MS anymore. I missed school on Wednesday and I’m not going
tomorrow but I have to make myself go Wednesday no matter what…
forgot to mention the other day that I had my eye appointment. Taking
the dial-a-ride thing in the wheelchair was weird, I used that ramp,
and I was all locked in, it felt weird, I don’t know. So they did a
peripheral field test and did a basic check up. Optic nerves looked
OK and I did not miss anything on the peripheral field test despite
my blind spot… I mentioned that this made no sense to me as I felt like it was worse so we did it
again but this time the longer test instead of the shorter test. The blind spot
is still there but it shrunk. It FEELS like it is worse because it
moved over the center of my eye just a tad so it is just more
noticeable to me where as before it was hiding to the side more. So I
feel like it is worse but I see more where before I felt like it was
better but I saw less, make sense?
to try to relax (pft) and rest a bit and then tomorrow I will try
calling my neurologist again. Friday and Monday are probably the two
worst days to try to call… Hmm… I am just trying to not dwell on
my legs, it’s hard, but I am trying. I cleaned out my fish tank, got some new dechlorinater solution, refilled the tank, added more
rocks, got two little live plants, and an ammonia tester since I know
the levels are high but I am not sure how high and I need a better
idea of how often I should do a partial water change to keep the
levels down. They seem to like their new set up, more exploring to be
done! I am so broke now!

5 thoughts on “And the Recovery Slowly Begins

  • November 12, 2012 at 5:19 am

    Hi Matt! I found your blog yesterday and spent quite a while reading your posts. They are so honest and engaging!

    And what I read from this post, is a theme of ups and downs. You start to improve and then you decline and it's a terrible let down. Is that right? I imagine this and all of your other posts are cathartic for other MS patients and others with similar experiences. It can mean so much to know that you are not alone and learn from others' ways to manage. And I imagine it's very cathartic for you to write — at least that's the impression I get from your writing voice.

    I started to blog (my blog is linked to my name) to chronicle my health issues and their emotional impact on me. I did it for a year and it was very rewarding!

    Your cane is so stylish!

    I Followed you on Twitter. My handle is @cartooninperson.

    Take care! I look forward to your next post!


  • November 12, 2012 at 1:20 pm

    Lol I will check your blog out, and yes, MS: Up and down/. And then REALLY down when your "brother" beats the crap out of you. Life. Haha Sometimes writing is a relief and sometimes it is a chore. That's they way it is supposed to be haha! Thank you!

  • November 17, 2012 at 4:13 am

    Hi Matt, This might be a stupid question, but have you tried getting BG12? FDA has not approved it in the US yet, but it has been long approved in the EU. The drug has shown some good results… but I am sure you saw this…

  • November 18, 2012 at 1:40 am

    Yes, I always hear about it, but not interested.. Just not for me I think…


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