I Got A Recumbent Bike For My Spasticity

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OK, I might be a tad short today… My computer that has my voice recognition software on it is being stupid, so I am trying to type but it is hard. Will keep taking short brakes and go slow, see if that works.

So, I bought a recumbent bike, was delivered yesterday, a box jam packed with pieces! I decided I would try to put it together. I did it! Yay! Just have to put the pedals on now!
… … …
why won’t it go in?
… … …
what the heck. Bike is no use without a pedal
… … …
My dad came home. I waited all day for this, maybe I just was not seeing something?
… … …
Nope, manufacturer threaded one side wrong. No righty -tighty/lefty-loosey, it was backwards.

So that was frustrating but now it all works and it did not take me long to figure out how pathetic I am now… It takes like ten minutes to do ONE mile! Man, I have a lot of work to do… It’s not that I feel tired, it’s that my legs just can’t push further than that. I did a whopping 2 miles today, 1 mile straight, then 0.5 miles twice. I guess I have not really used my legs all year but still. So much work to do… I like the bike though, I don’t feel like I am going to fall so that’s good…

Speaking of my legs, I ran out of Baclofen and I (like many) did not realize how much it was helping till I was no longer on it! My legs have been cramping so bad all day! I suppose I should mention, I tried to refill my prescription and they said they can’t for like a week! I am not sure how I ran out so fast but I am kind of mad! ARG! So that sucks… Used an entire box of epson salt in water just deep enough for my legs, nothing,

Anyways, vision does not double if I am looking at something about a foot away. Anything past that doubles still. But technically that is an improvement so I will take it. Better than nothing!

I start my ACTH tomorrow, it was supposed to be delivered today but I was asleep and did not make it to the door in time. Hope the cooler works well because it is supposed to be refrigerated! DOH! Found out that ATCH is a hormone that tells the adrenal glands to produce cortisol (natural steroids) so instead of using artificial steroids this causes me to use my own natural steroids! If this works it will be the coolest thing ever! I will be using 2 viles, $23,000 a vile, no wonder they don’t like to use it! I have insurance so… Yay?..

Might do a video tomorrow? IDK yet haha later!

 PS – RIGHT NOW, just felt an electrical sensation all up my arms, that has never happened… Hmmm…. Talk to you tomorrow!

10 Responses to I Got A Recumbent Bike For My Spasticity

  1. Anonymous says:

    Hey, I just found your blog and love how candid you are! I also just finished a round of ACTH last week (my 3rd time in a year) They work for me when I am having extremely bad attacks. I hope they work as well for you. By the way, I am Michelle, 44 years old and have had MS for 16 years.

  2. Matt Allen G says:

    Wow, nice to meet you! How long till you feel it take some effects? I was prescribed 10 days, Steroids stopped working so I have been in one long elapse all year…. Worried some of the mobility is permanent but doc didn't really seem to think that…. hmmm….

  3. Anonymous says:

    Nice! BTW, petals are always done reverse thread, so that you don't unscrew them by pedaling.

    One piece of advice which if you do will be amazing – get a foam roller and roll. Nothing makes you more flexible and stops muscles pulling. You may have tried it in PT. They're wonderful and it doesn't hurt after a while.

    Keep up the biking, but don't push yourself. Just do a little a day, a little a day, a little a day. In a month, you will be able to do more. Keep it slow.

    Good Luck! Keep us posted but seriously, aim low!

    Alex.

  4. Matt Allen G says:

    Haha can't believe I didn't think of that, ugh I am so slow now lol…. But yes, I am going slow! Don't want to re-re-re-re-re-relapse

  5. Anonymous says:

    Hey Matt, it's Michelle again. When I take the ACTH it usually takes about 2 weeks to start seeing improvement. I only did one bottle (5 shots) each time. I like to think of them as liquid gold, except gold is cheaper. I have taken everything also for my MS. Copaxone, rebif, avonex, beta seron, methotrexate, Tysabri then found out I carried the JC virus, solumedrol never worked for me so that was short lived. The best thing I did for about 3 years was IVIG infusions, but then they stopped working. My neuro has me on the ACTH every 6 months now until the new BG12 is FDA approved and then hopefully I can start that. If you have any questions about the ACTH feel free to ask. Good luck and I hope it helps you.

  6. Matt Allen G says:

    Thank you, I have 2 bottles, and yeah, gold IS cheaper! Lol I hope it helps me! Will post on it later!

  7. Anonymous says:

    WHAT GREAT NEWS TO HEAR THAT A DOCTOR FINALLY WAS SMART AND CARING ENOUGH TO 'HEAR' YOU AND LISTEN. THAT IS SO AWESOME!!! IT CAN BE SUCH A LONG ROAD, UNTIL YOU FIND A NEURO WHO UNDERSTANDS MS AND WHAT YOU ARE GOING THROUGH.
    FINALLY!

    YOU HAVE JUST MADE MY DAY….TO HEAR THE HOPE IN YOUR WORDS! AND SO COOL, TO HAVE THAT BIKE! GOOD LUCK WITH THAT!

    MARY-ELLEN

  8. Matt Allen G says:

    Lol ROAD? No, I been on a dirt path! I think I just hit a gravel road that SHOULD lead to an ACTUAL road lol, but thank, I think I have hope again haha!

  9. Anonymous says:

    Im new to this blogging stuff. I have ms with a foot that drags. Have had success with recumbent bike at the gym. I want one for my home but have NO idea what kind or what features it needs.
    HELP!

  10. Matt Allen G says:

    Well for me? The kind you can sit on and move your legs, mine has no features at all haha

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