Yes, I am back, again. I was sick last week with some kind of cold, kicked my butt, got to love immunomodulators (Rebif)… Amazing how a simple cold can destroy your body when you are already knocked down. I wish I documented this better but all I wanted to do was sleep, all day, everyday… I tried to drink lots of water to flush out my system but who knows if that helped. Getting used to that (not knowing)… So I went through a lot while I was gone, was sick, Symptoms have flared a bit, well, I will get to that, trying to find out if it was the Zanaflex that was making me dizzy or the Amantadine, tried acupuncture, and… That may have been it… Can’t remember…
Well, I am not feeling sick anymore, nose is still kind of stuffy but that gross feeling in the back of my throat and deep in my chest is gone. Problem is, my symptoms (MS) still suck! My vision is not 100% and worst of all my legs are so stiff! I noticed that I can not tap my feet smoothly, my left foot in particular, they want to drop in a jerking motion. My knees? Well, feels like they don’t want to bend while I walk. Again, my left leg is worse, but I am noticing that my gate is so poor due to my knees mostly, hardly bending at all at the left knee while I “walk”. Thanks to all this I can hardly keep my balance and even just standing is hard now. I had to use the wheelchair yesterday to go to the store really quick! This is the worst! I would do anything to make this ONE symptom go away! ANYTHING!
My vision has not been so great, kind of blurry and my blind spot sucks! I also have been dizzy on and off despite the fact that I stopped the Zanaflex (Spasticity) and Amantadine (Fatigue)… So I think one of those medications contributes but at the same time I just have MS related dizziness. Took Amantadine on Sunday, just 100mg (one pill) all day. Felt kind of dizzy but not to bad. Does not give me energy but the next morning I always wake up early, like 5am early, which I like. Might be worth it just for that! Took 8mg of Zanaflex today and it’s not helping the spasticity at all… I feel a little dizzy but with no results, this is not worth it at all. Might resume the Amantadine but no more Zanaflex for sure… -sigh-
Oh yeah, I tried acupuncture. I wish I had good news but, as much as I wanted it to work, I left disappointed. I felt no different on my way out than on my way in. She put a few needles in me and than a T.E.N.S. Machine on my back and than she left the room. I know it takes a few session buts I was hoping to at least feel some slight tingling, some change, something, but no, I felt nothing. So I decided if it is ever going to work for me the time is not now. I am going to wait a while before trying it again as I can not afford to invest the money in something I am unsure of. My insurance won’t cover it so it was a bit pricey out of pocket…
Let’s take a look at my newer symptoms:
- Slight numbness around lips/tongue/nose
- Slight pins and needles in hands
- Sever leg spasticity (Can not really walk)
- Dizzy on and off
- Horrible balance
- Fine motor skills impaired
- I feel like my breathing is a bit difficult
- I also feel like my swallowing is a bit difficult
I will have to talk about how I feel mentally and emotionally later, I am so tired! So that is what I have been up to, sleeping mostly… Will update more later!