Was Sick, Spasticity, Dizzy, Vision, Acupuncture, Amantadine, Tyzanidine, I Am Back

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Yes, I am back, again. I was sick last week with some kind of cold, kicked my butt, got to love immunomodulators (Rebif)… Amazing how a simple cold can destroy your body when you are already knocked down. I wish I documented this better but all I wanted to do was sleep, all day, everyday… I tried to drink lots of water to flush out my system but who knows if that helped. Getting used to that (not knowing)… So I went through a lot while I was gone, was sick, Symptoms have flared a bit, well, I will get to that, trying to find out if it was the Zanaflex that was making me dizzy or the Amantadine, tried acupuncture, and… That may have been it… Can’t remember…

Well, I am not feeling sick anymore, nose is still kind of stuffy but that gross feeling in the back of my throat and deep in my chest is gone. Problem is, my symptoms (MS) still suck! My vision is not 100% and worst of all my legs are so stiff! I noticed that I can not tap my feet smoothly, my left foot in particular, they want to drop in a jerking motion. My knees? Well, feels like they don’t want to bend while I walk. Again, my left leg is worse, but I am noticing that my gate is so poor due to my knees mostly, hardly bending at all at the left knee while I “walk”. Thanks to all this I can hardly keep my balance and even just standing is hard now. I had to use the wheelchair yesterday to go to the store really quick! This is the worst! I would do anything to make this ONE symptom go away! ANYTHING!

My vision has not been so great, kind of blurry and my blind spot sucks! I also have been dizzy on and off despite the fact that I stopped the Zanaflex (Spasticity) and Amantadine (Fatigue)… So I think one of those medications contributes but at the same time I just have MS related dizziness. Took Amantadine on Sunday, just 100mg (one pill) all day. Felt kind of dizzy but not to bad. Does not give me energy but the next morning I always wake up early, like 5am early, which I like. Might be worth it just for that! Took 8mg of Zanaflex today and it’s not helping the spasticity at all… I feel a little dizzy but with no results, this is not worth it at all. Might resume the Amantadine but no more Zanaflex for sure… -sigh-

Oh yeah, I tried acupuncture. I wish I had good news but, as much as I wanted it to work, I left disappointed. I felt no different on my way out than on my way in. She put a few needles in me and than a T.E.N.S. Machine on my back and than she left the room. I know it takes a few session buts I was hoping to at least feel some slight tingling, some change, something, but no, I felt nothing. So I decided if it is ever going to work for me the time is not now. I am going to wait a while before trying it again as I can not afford to invest the money in something I am unsure of. My insurance won’t cover it so it was a bit pricey out of pocket…

Let’s take a look at my newer symptoms:

  • Slight numbness around lips/tongue/nose
  • Slight pins and needles in hands
  • Sever leg spasticity (Can not really walk)
  • Dizzy on and off
  • Horrible balance
  • Fine motor skills impaired
  • I feel like my breathing is a bit difficult
  • I also feel like my swallowing is a bit difficult

I will have to talk about how I feel mentally and emotionally later, I am so tired! So that is what I have been up to, sleeping mostly… Will update more later!

9 thoughts on “Was Sick, Spasticity, Dizzy, Vision, Acupuncture, Amantadine, Tyzanidine, I Am Back

  • September 18, 2012 at 5:50 pm
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    Matt, for your age, you are wise beyond your years. Your writing is so beautiful, yet MS is not.
    I admire you so much. Seriously. You are a trooper. Your blog posts give hope to me, and others around the country and world.
    I have faith that in time, MS will be something curable. I hope it's sooner rather than later.
    You are so freaking amazing man.
    Keep up the great work on this blog. You really inspire me, and give me hope. Sending you lots of healing energy. hugs

    Reply
  • September 18, 2012 at 5:57 pm
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    Thank you, I don't want all this suffering to go to waste you know? So tired, legs are so stiff, will try to do a real update soon. Thanks man.

    Reply
  • September 19, 2012 at 7:28 pm
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    Baclofen consistently and in maybe a doctor prescribed larger dose over a period of time may be your best bet. I read another person describe help doing this, but it took a while with it in their system.

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  • September 19, 2012 at 9:07 pm
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    Matt,
    I have a question. I usually e mail my doc, but..she's kinda giving me the "ok lets not overuse the e mail thing..make an apt". So.. my question is: Do you ever feel like your on a boat? I have dizziness on and off anyway, but now I am going up and down like a boat ( all the feeling is in my head, but messes me up) crazy. However it doesn't keep me from being the "pinball in the hallway" I get dizzy, hit one wall, bounce off, and hit the other wall. My record is 3 bounces..lol I have to laugh or I'll cry.. Usually I end the "pinball" on the floor. Glad it's carpet and not the wood in the other room.

    Thanks Matt for your sharing… I wish I could make this all go away for both of us.

    Reply
  • September 22, 2012 at 1:24 am
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    Hey Matt still taking the coral calcium 3 times a day with food? Think it took about 10 days before i noticed it was working.

    sleekcartim

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  • September 22, 2012 at 5:41 pm
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    Just go out the hospital so did not after C clcium for a few days.

    Also SAW my neiro in hospital and that was STILL not enough to get her attention aided help…. So I feel you and I used to play pinball but now I can't even walk THAT much… ugh….

    Oh yeah, going to just take the Baclofen no matter what now, doctor never explained it works better when it is build up, not as needed… Nurse just explained that to me, go figure.

    Reply
  • September 24, 2012 at 12:53 pm
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    I get upset hearing that anyone has a hospital stay, esp an MSer, knowing how many horrific infections you can get there!
    glad it was a "lesser" stay for you. going to look up ataxia now… sleekcartim

    Reply

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