Hospital Visit 5? Multiple Sclerosis Sucks!

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Well, made it a couple of months without a hospital visit but on August 20th, 2012 I went into the ER. Was just not feeling great, I knew I was having a flare. Super weak legs, vision loss, and bladder retention were my worst symptoms that drove me in. As they say, “If you can’t pea, see, or climb a tree, you should come in”. So after 8 hours of waiting in the ER, well, outside to avoid getting sick, I was finally admitted. I know this routine, nothing new to me, 8 hour wait, get a room, then 1,000mg of Solu-Medrol for 3-5 days. Same old same old.

Got sent up to 9100, never been up there as it is typically ICU but they had a free bed. Was placed in a room with an older woman, that never happens as they like to keep genders separated but that is where the bed was. They did move me that night to a room with an older man named Nick. I think he was from Honduras? He needed a “watcher” who just sat there humming making sure he was OK, she kind of annoyed me, haha…

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Was in a decent amount of pain those first two days, back pain and sciatic mostly. Took a couple Norcos but pushed through the rest. Speaking of push, I had the full 1,000mg of Solu-Medrol pushed at once, no reaction, no headache, I liked it, but the neuro came in and made me switch to a pump, 1 hour, I hate that, I was annoyed with this neuro because we were talking about my spasticity and I mentioned how there is a good deal of research being done on Gabapentn helping spasticity in MS but he shot that down quick. “No, Gabapentin is not for that.” Yeah I get it, but don’t medications have multiple uses? I mean antidepressants are not for pain but they use them for that, What ever, he wanted to try Botox injections so I was happy that he simply wanted to TRY something as most doctors just want me out the door, “Sorry Charlie” they say… Still got my Gabapentin haha…

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So my Botox consult is on October 3, 2012, I REALLY hope it works because Baclofen no longer does anything and I get my flexerall on Monday. So we will see.

Got some new MRI’s done on the 22ed, was supposed to be at 8am but it ended up being 8pm. 2 hours long. They did brain, neck, and upper spine. I have all the results but there is just too much info, will post on that later… My face itched the entire time so it was really hard not to move but I was stubborn enough to fight through it haha, It was also really hot after a while. I knew each test took about 30 minutes then 20 for the contrast. I counted the time down, 1001, 1002, 1003, 60 seconds, 30 times, then that 3 times. I was pretty accurate, it passed the time, kind of… Not fun but good to get done. Just have to organize all this new info some how!

Finished my Solu-Medrol and they let me go yesterday (the 24th 2012) so 4 days of roids satisfies me, now the rest of my recovery is up to me. Got some tips from my PT for hamstring stretches so going to get religious about that! I also got out patient rehab prescribed so I need to set that up because I really think it will help me out along with that Botox. Lots of planning! Let us see if we can turn this year around because I am sick of that hospital!

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(Had to shower so I thought I would share our solution to protecting IV… Bio Bag with lots of tape haha…. Very cold shower by the way…)
If you would like to help keep me out of the hospital click HERE to donate to my stem cell cause! Be sure to watch the video on the right side bar that explains how these are non-controversial stem cells! I REALLY want this! REALLY BAD! I want some life back so PLEASE DONATE HERE!

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0: Hi. I am not experiencing any pain at all. I don’t know why I’m even here.
1: I am completely unsure whether I am experiencing pain or itching or maybe I just have a bad taste in my mouth.
2: I probably just need a Band Aid.
3: This is distressing. I don’t want this to be happening to me at all.
4: My pain is not srewing around.
5: Why is this happening to me??
6: Ow. Okay, my pain is super legit now.
7: I see Jesus coming for me and I’m scared.
8: I am experiencing a disturbing amount of pain. I might actually be dying. Please help.
9: I am almost definitely dying.
10: I am actively being mauled by a bear.
11: Blood is going to explode out of my face at any moment.

6 thoughts on “Hospital Visit 5? Multiple Sclerosis Sucks!

  • August 27, 2012 at 12:48 am
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    Man you gotta put urself in a serious zen place to deal with all this. I think meditation, or some equivilant is mandatory for MSers, NO JOKE! I have to work on being zen, just hearing your hell. I can see ppl easily losing their religion over this SHIT. I give you mad props matt & anyone else successfully existing with MS without completely losing it. losing it is counterproductive for sure. I liken it to burying your worries in drinking or drugs, it only makes it all WAY worse.

    sleekcartim

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  • August 27, 2012 at 2:04 am
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    Well, I wish I knew how to get into a state of meditation, that is all I can really say…

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  • August 27, 2012 at 5:19 am
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    Matt,
    You've been through hell. I can't imagine making ER visits routine. And you still made jokes about being in the hospital, good for you, keeping such a sense of humor. The way you moved your eyes around in the hospital is one
    I know and pulled my heart-strings to ache, it's like visual sensory overload. Maximum processing is what it feels like for me. Try not to listen to exciting music during those times you need to be calm, of course, as you are trying to get into zen. Relax and quietly watch your favorite bright colors for a few minutes. Then calmly change to another venue of activity in the house. Matt, I feel so bad for you. I remember the unrelenting desire and compulsion to try whatever works to fix my situation as well. You might enjoy breathing meditations. Make up your own guided imagery or remember a pleasurable ten-second scene from your life (even a favorite movie memory scene might work) or imagine tasting the food you like best. There's so much more…

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  • August 27, 2012 at 2:21 pm
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    Yeah, well, no sense in being negative about it right? Humor helps haha… As far as zen goes, that will be a learning process for me. Have to be honest, memories depress me, so no on that haha, classical music is good, piano, classical guitar, so we will see!

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  • August 28, 2012 at 12:50 pm
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    all i can say is you better get right with yourself mentally, what are you gonna do when all you wanna do is run & hide from the hell… you think your in hell now… it's one of the VERY FEW things you DO have control over. Use the force skywalker! google that shit.

    sleekcartim

    Reply

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