Vision Getting Better and Starting Rebif

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FIRST OF ALL! I am still pretty blind BUT today it is way better so I have to be happy for that. Hopefully tomorrow will be even better! Trying to take in all the anti-inflammatory stuff I can and have even been taking cold showers to lower my core temperature. Maybe that is stupid but I have heard of others doing that and it has to be better than a hot shower right? Haha…

Trying absolutely everything I can to get some sight back…
I even increased my B-12 to 2,000 IU…

“A B-12 deficiency can impact vision by damaging the optic nerve 

that relays signals from the retina to the brain”
http://www.livestrong.com/article/447034-vitamin-b12-deficiency-in-the-optic-nerve/#ixzz1xV8YHDLh
I don’t know if I believe this will make a difference but B-12 is water soluble so can’t do too much harm. Definitely do not feel any energy difference, in fact, I took a long nap today so, yeah, I think energy is not going to come from B-12 for me although I still have to try liquid B-12 as someone recommended.

ANYways, had my first Rebif (interferon beta-1a) Injection today. Nurse came over to do “training” and after being on Copaxone for so long it was all pretty easy. A subcutaneous shot pretty much is a subcutaneous shot it seems, just had some stuff to learn about the drug itself. I am tapering up to full dose so hopefully I don’t get the flu like symptoms, funny, after all I have been through I am worried about flu like symptoms lol…

So cool, no more daily shots, just 3 times a week now so hopefully I remain symptom free (as far as the medication goes) and hopefully it helps me baseline. Going to skip my arms as well since I do not have much fat there and you do not adjust the needle depth between sites but since I am going from 7 a week to 3 a week it looks like it will be no big deal.

Remember to talk about all this with your nurse, just sharing my personal experience!

I am really hoping that after we move I will cut enough stress out of my life that my body will be able to baseline because it has been treating me… not… so well… this year… I will give myself like a week to rest after the move and then I will try to get a better routine going, exercise, sleep, diet, medication, etc. So we will see if all this change helps my health! I am tired of feeling sick and sick of feeling tired!

Wish me luck!

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2 Responses to Vision Getting Better and Starting Rebif

  1. Anonymous says:

    HI MATT,

    I DO WISH YOU LUCK, YOU HAVE A LOT GOING ON, THAT'S FOR SURE. BEING A SMART GUY, YOU ARE TRYING ALL THAT YOU CAN AND YOU JUST NEVER KNOW, YOU COULD FIND THE KEY TO UNLOCKING SOME OF THE SYMPTOMS YOU ARE EXPERIENCING. WHAT WORKS FOR ONE PERSON….MAY HELP OTHERS TOO. OBVIOUSLY WHAT DOESN'T WORK FOR ONE PERSON IS GOOD INFORMATION TOO.

    THIS MOVE YOUR FAMILY IS MAKING, REALLY SOUNDS EXCITING FOR YOU. TO HAVE YOUR OWN SPACE, BATHROOM AND MORE PEACE WILL HELP YOU OUT A LOT.

    I ALSO HOPE THOSE NASTY FLU LIKE SYMPTOMS STAY AWAY FROM YOU. WITH ALL THE DIZZINESS YOU'VE BEEN HAVING, MAYBE YOU WOULDN'T NOTICE ADDITIONAL NASEAU!

    I'M NOT A DOCTOR, I'M JUST A "NURSE GOOGLE", SO BE RESTING AS MUCH AS YOU CAN AND SLEEP WHEN YOU NEED TO AND DON'T FEEL GUILTY ABOUT THAT. YOU'R LISTENING TO YOUR BODY AND NO ONE ELSE CAN DO THAT FOR YOU…BUT YOU.

    I WILL SEND YOU ENERGETIC THOUGHTS AND HOPE THE VISION CLEARS UP FOR YOU, BEFORE TOO LONG.

    I AM EXCITED ABOUT YOUR PROSPECT OF MAKING A VIDEO ABOUT YOUR EXPERIENCES WITH MS. WE HEAR ALL THE TIME, HOW OTHERS CANNOT BEGIN TO UNDERSTAND WHAT THE INVISIBLE SYMPTOMS ARE ALL ABOUT, SO TO MAKE A VIDEO THAT CAN BE SHOWN TO THOSE WHO "NEED" TO KNOW, IS SORELY NEEDED.

    MAYBE A SECTION OF IT CAN BE A SHORT BIT ON HOW TO TELL YOUR DOCTOR WHAT YOU ARE GOING THROUGH, BECAUSE OFTEN THEY HAVE NO IDEA, THEY TEND TO THINK THAT WE ARE MAKING IT ALL UP. ACTUALLY, WE COULD SHOW IT TO OUR DOCTORS, SO THEY WOULD HEAR YOUR DESCRIPTION OF THE PATH MS IS TAKING WITH YOU STRAIGHT FROM YOUR LIPS!!!

    DOCTORS AREN'T MEAN, THEY ARE UNINFORMED AND NEED A QUICK LESSON! (WELL, THEN AGAIN, MAYBE SOME ARE) LOL

    YEARS AGO I TOLD ONE OF MY DR.'S THAT I HAD BEEN DX WITH MS. SHE WAS SO SUPRISED AND SAID TO ME "OH….I NEVER SAW YOU WITH "FOOT DROP"??? SO DOES THAT MEAN THE POOR DR. THOUGHT WHEN WE HAVE MS, THE FIRST SIGN WOULD BE FOOT DROP???? I'VE HAD A LOT OF SYMPTOMS, BUT NEVER FOOT DROP (YET) WOW!!! CRAZY STUFF!!!

  2. Matt Allen G says:

    "DOCTORS AREN'T MEAN, THEY ARE UNINFORMED AND NEED A QUICK LESSON! (WELL, THEN AGAIN, MAYBE SOME ARE) LOL"

    Love it! lol so true…

    THANK YOU FOR [POSITIVE ENERGY, I'LL TAKE IT! DIZZINESS IS NOT ANY BETTER TODAY BUT I GUESS IT JUST NEEDS MORE TIME. WORST CASE I'LL GO BACK IN FOR IV STEROIDS…. UGH,

    MOE WILL HELP A LOT, CAN NOT EVEN EXPLAIN AND SAME WITH SSI!

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