Progress Update – All I Want

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Yes, I know, I said I would work on telling everyone about my first hospital stay and I don’t think I did, did I? There is just so much to say, I am going to take a while to write it, maybe… Either way I am working backwards and with my new memory, that is not good. So for now, let me give you another progress update.

Well my walking I suppose is improving a little, not a lot, but every bit helps. Oh and… And that is it. Nothing else has really got any better lol… Maybe my fine motor skills but I am not sure how to measure that and everything else. It’s also hard because I can not tell if certain things are improving or if I am just getting used to it all, me “new normal”?

I have been watching what I eat still though I have loosened up a bit in the last week or two and I am not noticing any changes in my symptoms what so ever… Don’t worry, I am still going to eat really well because I am still a pretty firm believer in “You get what you put into it”. I have also been working on getting my body moving again. Have not started up too much because I have to start off slow to avoid triggering another relapse but been working on the bike and stretching mostly. Well, various exercises with the stretchy band things. Not sure when I will feel ready for free weights… It’s a start, a very slow start.

I need to work on my core ore because that will help with my walking and balance. It’s just hard because this “MS Hug” still has not let up. Man I hate this! Most the time I do not notice it but every once in a while I find myself doing something only to stop and go “wow, this would not be so bad if it wasn’t for this stupid hug!”. Did I share? The other day I looked up all the medication they can prescribe for it… I have it all. Go figure. So I raided “Matt’s Pharmacy” and I found out none of it helps me. I could probably try taking way more Baclofen but I am almost out and it just makes me super tired so I will save it for now. Just got to push through the hug, do as much core as I can, or should, and hope it eventually goes away.

The numbness/pins and needles in my hands is still there, sometimes it spreads up to my elbows, and sometimes it stays in my hands. So annoying! So hard to get used to this for some reason. This is one of my least favorite symptoms at the moment. The hug, vision, balance issues, Cog Fog (almost forgot haha), what else… Random shooting pains, sometimes some aches… Oh burning! Especially at night! Last time I mentioned it I said it felt like I was getting too close to a fire. It mostly seems to pop up on my right side, rib cage, chest, and shoulder. Mostly… Still not taking pain meds, so that is good.

The pain I feel is nothing. I would gladly double it in exchange for better walking and fine motor skills. All I want is to be able to blend in with a crowd of people! I want to be able to get around! I could care less about the rest of my symptoms if I could just have that back. Even now as I type I am feeling a weird pain on the side of my right forearm and right knuckle. Don’t care. It’s just weird now, I don’t feel like I am actually in pain, it’s just a sensation that is part of everyday life now. It could be way worse so I do not complain and I have a huge pain tolerance anyways so I rarely need pain killers.

Time to go weigh myself, later!

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7 thoughts on “Progress Update – All I Want

  • May 29, 2012 at 11:12 pm
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    I have not thought of this before…'if I could just blend in with a crowd' I want that too. All the symptoms seem to be weird

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  • May 29, 2012 at 11:18 pm
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    Weird… And unique to the individual… They all suck, we just have to figure out what it is we want out of our lives. If I could have my movement back and just blend in I could travel and do everything I want to do in life without feeling weird… Everyone is different though…

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  • May 30, 2012 at 1:33 am
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    I had a friend post this as his fb status the other day. Thought of it when you talked about food…
    ~'They say, "You are what you eat!" That's funny. Cause I don't remember eating a sexy beast this morning.'~
    Thought that might make you smile 🙂

    Reply
  • May 31, 2012 at 1:04 am
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    G'day Matt – I wasn't diagnosed with MS although I had several symptoms. Could you please explain what "MS hug" is? I guess it's muscle tightness in the chest.

    If that's the case, then the VB1 and VitC doses 6 times a day, may relax the muscles to give relief.
    This treatment increases breathing, so relaxing the muscles – it also suppressed cramps, twitches, tics etc.
    Best Wishes
    Elaine

    Reply
  • May 31, 2012 at 3:01 am
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    "Make an obstacle an opportunity, make a negative a positive.”
    “Pain is temporary. It may last a minute, or an hour, or a day, or a year, but eventually it will subside and something else will take its place. If I quit, however, it lasts forever. That surrender, even the smallest act of giving up, stays with me. So when I feel like quitting, I ask myself, which would I rather live with?”
    –Lance Armstrong

    🙂

    Reply

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