Progress – Trying to Get My Vitamin D

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 I know there are supplements, I was taken them for the longest time since vitamin D is supposedly really good for MS patients(Depending on what research you follow). I had also read somewhere that it was also good to get a specific amount of some my everyday but I had a hard time finding that information. Yesterday I found it however,

Sunlight – 15 minutes daily 3-5 times a week as close to all over as practical

So glad I found this! Most people would agree that it is best to get all your vitamins as naturally as possible whether that is from food or through the sun itself! I have been trying to sit outside every morning for about five minutes in the sun before it gets too warm. Now that I have found this bit of information I will try my best to incorporate some sun time into my day and I will be sitting for longer than five minutes, I’ll do this until the heat gets to be too much since I have an extreme heat insensitivity. Right now it is surprisingly nice outside!

 Will also try to pick up some vitamin D pills ASAP, I also need to get my levels checked next time I go to the doctor!

20 thoughts on “Progress – Trying to Get My Vitamin D

  • April 9, 2012 at 1:11 am
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    Hi Matt! Glad to see your posting. I take 6,000 units of Vitamin D a day and my Vitamin D was only 47 (normal range for this lab was 20-80) when i got it tested recently. I've only been taking it for a couple of months and I haven't had any flares (not exactly a long period of time!) but it's better then nothing.
    Did you know that people with MS have a lower rate of skin cancer? I always find that fascinating!
    Take care,
    Lisa

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  • April 9, 2012 at 1:19 am
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    Wow, that is low for taking so much VD,,, And yes, I had gear that before haha, makes sense, most of us can not do heat so we avoid the sun

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  • April 9, 2012 at 2:30 am
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    I learned here recently that a normal sun exposure results in 50K IU Vit D. so 6 K a day is a drop in the bucket

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  • April 9, 2012 at 2:40 am
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    50K IU?????????? I almost can't believe that WOW, Ill take the supplements on top of getting outside wow…. I'll make sure to stop the supplements like a week before getting tested to see where I am at without the oiills JEEZ haha!

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  • April 9, 2012 at 11:22 am
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    Matt,

    I take 200 mg of Co-Q-10. Try this — it does great things for your muscles.

    I also take a 50,000 IU Vitamin D pill weekly. My MS specialist says that they like MS patients to be on the higher end of normal. It is hard to get to toxicity levels. You just need to monitor the level through blood work every 6 months.

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  • April 9, 2012 at 1:21 pm
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    double check it Matt…. Im just going by what someone here told me, while u were in hospital. I had the same opinion as you Matt, that 50 K IU seemed like a lot. I posted my concerns on here after my PCP prescribed 50 K IU a week for 8 weeks, but my level is still just below normal. Im sure it will improve soon as weather gets better & spend more time in sun.

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  • April 9, 2012 at 2:48 pm
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    I just don't know how I would afford so many pills lol! I can't remember how many IU each pill was when I used to take VD but that sounds like an entire bottle a day to me lol!

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  • April 9, 2012 at 6:02 pm
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    Have your doc give you a 50K IU weekly (at least & possibly a LOT more, depending on how much time you want to spend in sun) prescription, dont take no for an answer (not that you would lol). have you gotten yourself in an MS clinic or MS specialist? If not, DO IT. seriously ppl, DONT waste time with non MS docs like it did!!!

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  • April 9, 2012 at 6:19 pm
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    I am trying but…. Ill talk about it later, gunna try for HOAG again though haha

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  • April 9, 2012 at 7:09 pm
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    I've been taking some vitamin D supplement but all in all, just the regular recommended dose from the bottle…. Living in the north of England means it tends to be a little grey here anyhow. I am going to ask about vit D levels when I go back to neurologist on Friday…

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  • April 9, 2012 at 9:34 pm
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    My insurance pays for my 50,000 IU Vitamin D pill — prescription given by doctor. Several insurance companies do not. Your parents could, or you, could check that out beforehand. If they pay, GO FOR IT!
    Takes a while to build up the levels.

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  • April 10, 2012 at 12:44 am
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    yeah — but if you run into problems, I remember reading on the msconnection site that sun valley makes a 5,000 IU Vitamin D pill. Remember to get your blood work done. Best to go through the doctor — he can see your levels and prescribe appropriately, to get you where you need to be. You need that right now. You need the doctor to do this!

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  • April 10, 2012 at 1:04 am
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    On MSWorld there is a section called Tara's Nutrition and she did an experiment on herself with the Vitamin D supplements and her levels. I found it interesting and informative. Obviously as you posted, I think natural vitamin d is the best but that only works if you make and metabolize vitamin d properly, which I'm not certain that all people with MS do. On my Bottle iit says that 5,000 units is equivalent to 1250% of your daily requirement.

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  • April 10, 2012 at 1:30 am
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    Well, Ill start on 2,000 IU a day tomorrow OTC an get into a doctor to check my levels ASAP so we can adjust however needed! :^b

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  • April 13, 2012 at 3:56 pm
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    Matt,

    congratulations on finding the OMS site. It is a more positive resource than other sites. I encourage you to read the book – it provides an excellent education in all things MS from Dr. Jelinek, who has MS himself.

    Alex

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  • April 15, 2012 at 1:09 pm
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    Matt or Matt's parents,

    IMPORTANT! Take OTC Vitamin D with some fat, because Vitamin D is fat soluble. If you are getting it prescription it is encapsuled with that oil already. But OTC is not — can be taking the Vitamin D and it not getting into your system.

    Just learned this on MS Connection site. National Multiple Sclerosis site.

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  • April 15, 2012 at 6:26 pm
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    I learned that somewhere to so I am taking my fish oils and what not, thanks!

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