A lot of people with Multiple Sclerosis are somewhat shy about it, they want to hide it. Now in some cases that is OK and some people would even say that it is the right thing to do in certain cases but when it comes to your individual life you should not be shy! It is amazing what talking to others with MS can do for you! I would not be doing as well as I am today if it was not for the many other MS friends I have made online.
That is the beauty of the internet, you can have an entirely separate life that no one else knows about but you! Sure that opens doors for all sorts of creeps but that is a totally different conversation that we are not going to get into haha… Anyways, my point is this, you want to keep your MS a secret? That is fine but you can do that while still being open about it! Join an online support group! I run one myself on Facebook, it’s a private group called MS IS BS. Since it’s private, no one can see that you are part of it and no one can see what you post in it except for other member of the group who all have MS!
I strongly recommend you try something like this out. My group is full of friendly, caring, informative people from all over the worlds, both men and woman of all different ages with all sorts of different MS experiences! Lots of people say that it is almost therapeutic to talk with others who have MS, it helps you realize that you are not alone and it helps you vent because these people truly understand exactly what you are going through! Family and friends can be as empathetic as possible but they still don’t truly get that one little thing you are trying to explain, they don’t truly understand why you are just ready to brake down do they? Other people with Multiple Sclerosis get it and once you see that it will feel so releiving!
I know it’s scary and it’s hard, you have kept this to yourself for so long but trust me when I say, it may be awkward at first but after you start talking about it you will soon find that you can’t stop talking about it! Letting it all out will make you feel better and can change your attitude which can effect your health in positive ways! And remember, if you join a group like mine, it’s private! No one can see what you are saying but other people in the group with MS! After you say what you have to say you just sign off and now no one knows about your MS. It will become a place to turn to when you need to escape your life of secrecy! Of course I would hope that after a while you would build up the courage to let people in your personal life know about your MS but not everyone wants that and I respect that but you should still be able to talk to someone about it and who better to talk to than someone else with MS who won’t judge you or get scared off!
So if your interested in giving it a try, click HERE to visit my page about my group where it will direct you how to join. You can always leave if you don’t like it but you do need a Facebook account! I hope to hear from you soon so that I can add you to a group of friends who will share a family like sense of community with you!