Yearly Archives: 2011

Prednisone is Helping, MS and Genetics?

Well first of all I just wanted to mention that the Prednisone seems to be helping a bit. My walking is much better but my hands are still not back to normal. I can type and do most things as usual but they just feel somewhat stiff and certain motions are hard to do; sometimes my strength slips away… I don’t even want to say I hope they get better because that would imply that part of me fears they won’t and I can’t afford that, I need my hands! I am at 80mg of Prednisone right now and I am about to kick it down to 60mg come Monday. I have also been taking the Gabapentin consistently which seems to be helping a little with the pain although I have been feeling it in my fingers all day today which could be a result of me once again thinking about my lacking financial life. Stress is bad. Perhaps the Prednisone has been helping with the pain as well? Who Knows.

On an unrelated note, I was looking into MS and genetics the other day. Of course this is a rather split theory but many patients believe that Multiple Sclerosis is genetic and then you have other people (professional and unprofessional) who believe that it isn’t. When doing a quick Google search I stumbled across this article on About.Com that was talking about the very subject and the facts just kind of irritate me. Here is a paragraph from the website:

I Finally Have What I need to Kick MS in the Butt

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Well for now at least, you see, I have had three flare ups in the last 4 weeks or so. I had one steroid treatment (IV) which cleared most of it up until I got a really bad cold which brought it all back and more. I started getting better and then fell apart again! I was not going in to the doctors at this point for what ever reason (probably because there is nothing they could do but give me Prednisone so hmmm… I dug out an old bottle of Prednisone, logged on to KP.org, and requested a refill even though I was all out of refills. Sure enough, they are so careless that a doctor I have not seen in almost a year refilled a new order of Prednisone! I picked it up today and will be starting a taper from about 80mg which should help clear everything that’s left all up! Yay!

In the last few weeks I have been dealing with a lot… I could barely walk and when I started feeling better I had to use a cane… My coordination was off causing my legs to shoot all over the place, I couldn’t maintain any kind of steady gate. I was dizzy and had all sorts of shooting pain along with numbness or occasional pins and needles. My vision was a bit blurry and I lost my fine motor control especially in my hands. Everything was difficult, even eating which caused me to drop food off my fork which often landed somewhere on me… I was fatigued and even nauseated at some times. Everything was annoying me, I was in a horrible mood, and my sensitivity to noise further enhancing my irritability. I’m sure I am leaving out heaps of symptoms like my loss of taste. These thing have become so natural to me that something as sever as loosing my sense of taste was able to slip my mind like nothing ever happened. Cognitive issues are just a part of life now so I forget to mention them! I can’t think, find the right words, and I even slur my speach sometimes! All this I forgot until just now! That’s what happens when I don’t blog daily but like I said, its just normal to me now…

The Type Of MS Pain I Am Feeling

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Well I thought I should take the time to explain the pain I have been going through since this is a rather new symptom that seems to be sticking around.

I have always had random sharp shooting pain here and there but by random I mean like once every month or two. Now I am getting them multiple times every single day. Imagine a sciatica in your arm, shoulder, back, temple. I can litterally tell where my nerves are as a result of the pain! Sometimes its settle, ignorable, and sometimes it makes me stop in my tracks waiting for it to pass. I think about when Montel Williams described his pain as someone stabbing a hot poker into his heel and moving it around only I imagine an object sharper, skinnier, and electrified rather then heated. My torturer stabs it deep into the center of a random limb, shoves it in all the way, and then pulls it out all in an instance.

I Have Lost My Way but I want to Find It Again

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When I first started this blog I wanted to spread positivity and help people connect. Some would say I have done that. I have brought almost 270 MS’er together in my Facebook support group alone and have received numerous emails from people who found my Youtube videos helpful despite the fact that I think they could be done so much better. I had a message and that message helped many but now I am finding that I am lost. I no longer have a clue as to what I believe in. I am loosing faith in people, I have become a morbidly pessimistic person, and I don’t like it. Worst of all, I don’t know what to do.