I Finally Have What I need to Kick MS in the Butt

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Well for now at least, you see, I have had three flare ups in the last 4 weeks or so. I had one steroid treatment (IV) which cleared most of it up until I got a really bad cold which brought it all back and more. I started getting better and then fell apart again! I was not going in to the doctors at this point for what ever reason (probably because there is nothing they could do but give me Prednisone so hmmm… I dug out an old bottle of Prednisone, logged on to KP.org, and requested a refill even though I was all out of refills. Sure enough, they are so careless that a doctor I have not seen in almost a year refilled a new order of Prednisone! I picked it up today and will be starting a taper from about 80mg which should help clear everything that’s left all up! Yay!

In the last few weeks I have been dealing with a lot… I could barely walk and when I started feeling better I had to use a cane… My coordination was off causing my legs to shoot all over the place, I couldn’t maintain any kind of steady gate. I was dizzy and had all sorts of shooting pain along with numbness or occasional pins and needles. My vision was a bit blurry and I lost my fine motor control especially in my hands. Everything was difficult, even eating which caused me to drop food off my fork which often landed somewhere on me… I was fatigued and even nauseated at some times. Everything was annoying me, I was in a horrible mood, and my sensitivity to noise further enhancing my irritability. I’m sure I am leaving out heaps of symptoms like my loss of taste. These thing have become so natural to me that something as sever as loosing my sense of taste was able to slip my mind like nothing ever happened. Cognitive issues are just a part of life now so I forget to mention them! I can’t think, find the right words, and I even slur my speach sometimes! All this I forgot until just now! That’s what happens when I don’t blog daily but like I said, its just normal to me now…

Anyways I have slowly been recovering but when I say slowly I mean slowly. I can walk OK without a cane now and my pain is subsiding a bit maybe because of the Gabapentin? Can’t be sure. I don’t feel as numb in my right shoulder area nor do I feel any kind of burning sensation around there. My fine motor skills are still lacking but I can type OK. Sometimes my hands spasm and I click the wrong key or a bunch of keys at once but I can control it OK… It feels unpleasant though… My cognitive issues are still poor but not as horrible as they can get, this I can somewhat control as well but it’s also very unpleasant. I think my taste has returned but every now and then I take a bite into something that doesnt quite taste right so certain things may still allude my taste buds.

Since the things that remain are rather faint in severity, I am really hoping that the Prednisone will help clear them up. I have a good amount of it and since I respond so well to them I think if I take around 80mg for a week and slowly taper down it will help a lot. I didn’t like taking Prednisone for such long periods of time but I also don’t like these flare ups and the possible damage they could be causing to my nerves. I really don’t want permanent damage… Hopefully once my new insurance kicks in I won’t have to play doctor anymore. We shall see.

6 thoughts on “I Finally Have What I need to Kick MS in the Butt

  • December 13, 2011 at 10:14 am
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    MATT: i´m so sorry… we are in this MS TRIP since aug 2010.And since jun 2011,when i found a real doctor,this has been another story.i did 4x solumedrol x 5days with nice results.20 days in hospital "resting" my mind,seeing slowing progress(es?).My IRM in oct,showed 3 more popcorns.but im doing better today than 2010.i did Copaxone only for 7 days and had a crazy reaction.But i´ll try again next days .MATT: insist on prednisone IV,sorry i cant think in english and im goint to sleep on this keyboard.Dóris.

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  • December 14, 2011 at 2:47 am
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    Well it was easy to get and always is but I didn't want it that much before. Now I need it but if I can get through without it I will. Thanks!

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  • December 15, 2011 at 12:15 am
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    Hi Matt on your medical record I saw your were using LDN and I wanted to ask if you thought that was working? My brother is on Rebif and going to start Copaxone-sp? in a week. He was struggling with depression and anxiety and they think part of it is the Rebif and part is just dealing with the MS. He wants a pill option so that is why I am asking. Thanks

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  • December 15, 2011 at 2:56 am
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    A lot of people swear by it but they say you should start out around 1.5 or 2mg and work your way up, some people can't even get to 4.5mg because it start giving them side effects. My doctored started me on 4.5 and I seemed to have reacted to it so I have been afraid to start it back up! I want to divide the capsules in half, as pain staking as that is, and then try it again but I have not got to it.

    BTW, you can take LDN with Copaxone but none of the other shots and of course you can not use any kind of narcotic while on it. All stuff his doctor will explain!

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