Having Some Kind of Flare Up – Loss of Balance and Fatigue

multiple sclerosis ms balance issues loss

I don’t know what happened but I have been falling apart in the last few days… It all started after I stayed out a bit lateer than usual the other night. It’s not like I was doing anything crazy, I went to dinner with some friends and then we hung out for awhile sitting on the couch talking. I got home just a couple hours later than I have been going to bed lately. So what the heck? Maybe it’s just a coincidence or maybe not… I don’t know but either way the fact of the matter is, I have not been feeling well.

I first started noticing that I was having a much more difficult time waking up than usual and throughout the day my fatigue was dragging me around much more than it usually does. Then I started noticing my balance was a little out of whack. Over the next couple of days it was all getting worse. I was falling back asleep throughout the day and several times I almost fell because of my balance and clumsy legs.  Yesterday I had some vertigo manifest out of all this. My head felt like a gyroscope was spinning out of control deep down inside and tilting it either way made me want to fall over… Once again I am finding myself using my hands to guide myself down the hallways and around each corner. The walls serve as an occasional brace for when I stumble or lean too far. I am finding myself dropping back into my bed as I try to stand up from it as if a rope was tied to my chest and someone was pulling it every time I tried to stand.

I pretty much slept all day yesterday and at one point even slept for about 5 hours straight. I thought I would be up all night because of this but no, I woke up around 5pm and was already having a hard time keeping my eyes open around 9pm. I can’t remember the last time I felt so tired! I finally got up off the couch around 11pm after dosing in an out of the 6 hour Ghost Hunters Live Halloween special and didn’t wake up til about 11am. Today I don’t feel any different. Just as tired and my balance is just as bad. I feel really clumsy which is making typing very difficult,,, My vision isn’t helping too well either as the blind spot to my left is pretty vivid right now as well…

What the heck!

Well I’ll leave it at that for now, I feel dizzy and my hands are not working right so Ill update later. Thanks for reading! (and sorry for any spelling or grammar errors, it’s just one of those days.)

4 thoughts on “Having Some Kind of Flare Up – Loss of Balance and Fatigue

  • November 2, 2011 at 1:18 pm

    Hey Matt, I got a shirt from my local ms meeting yesterday, says "I'm not drunk! I have Multiple Sclerosis!" thought you might get a kick out of it.. (picture http://i39.tinypic.com/npfgnd.jpg)

    I have been following your blog for a while now, and I started my own. Its a bit rough on the edges and it doesn't shine a very positive light right now. It's a young adult's blog so it is very forth coming and little is held back. Alot of MS blogs seem to tell people about their issues but focus on the positives. Since I don't currently have any, there isn't any posted for the time being.


  • November 2, 2011 at 7:23 pm

    Haha well I will definitely be sure to read it some more, just checked it out and yeah haha. I just try not to be too negative myself when I write because sometimes I feel like it MAKES me more negative. There is actually a science to it but I can't remember what it's called but it goes just like that: If you act happy you start to feel happy. If you act angry it makes you more angry. And so on and so on. But sometimes you do need to vent I know that much!

  • November 2, 2011 at 7:53 pm

    I hear ya. I wouldn't say I act negative, but people act too positive about their MS, and I have yet to find that yet, and that seems to come out in my posts.
    I'm not walking around giving people the finger or anything like that. I treat everyone with respect and all that. I should probably be clearer about that on my blog. But I'm not going to hold back on my current feelings about MS.. I am just aiming to write exactly whats on my mind and skip the fluff. Since family and friends don't know I don't have that blog I don't have to worry about their feelings about it (hence the AnonyMS).
    Anyways, I wanted to share it with you, I will be posting about medications and stuff that I try and we are both in our 20's.. Starting something new tonight to help with spasms in my sleep. Can't remember the name but I'll write about it later.

  • November 2, 2011 at 10:20 pm

    yeah, I know what you mean about people being overly positive… I try to be as realistic as possible but I do have to admit, I often hide the negative side of things which can be looked at as a bit of a lie when it comes to sharing my MS experience. Having MS does not make us extremely positive people, in fact, I would say it makes us more negative however, to counter that "symptom" we make ourselves appeared to be more positive to help ourselves and to help others see that it is possible. It is both good and bad so I think it is important to find the right balance.


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