Well that was in fact the fastest I have ever responded to a steroid treatment and it was only 3 days on the IV! Granted I did start taking 80mg of Prednisone a few days beforehand which probably helped too but even still, my symptoms cleared up in less than 2 weeks and noticeably! No more double vision for me! Things are still a little blurry but my glasses fix that no problem so glad for that, will be doing some portraits later on this evening for some friends, it will be nice to be able to take some pictures and work on them without being blind!
So not much else has been new, I have been really tired lately and oversleeping sure doesn’t help with that… Even with 3 alarms I find myself crawling right back into bed and knocking back out… I really hate this yucky, groggy, feeling that I get all day from oversleeping, I need to start working out. Need to figure out what the heck I am going to do about my diet and than try to start putting some weight back on and building my strength and endurance back up. That should help with my energy levels… But I have lost almost 15 pounds in the last couple weeks… Not good… I hate being skinny!
I also need to figure out what I am going to do about my treatment options. I need to demand a new neurologist again and maybe even try to get a referral to Loma Linda or something like that once more but I need something new and I need to be under someone’s care because right now I really am not… My PCP moved and my last Neuro is a quack and I refuse to see or even talk to him again. That reminds me, got to write that formal complaint haha… Anyways I am also wondering what to do about my LDN. I am fearful that maybe the high dosage I have been taking has been contributing to my last few relapses… Its so hard to tell… So I think Ill do a little more research and talking around on that one before I start it back up because with school starting in a week or two I can’t afford to go out again, litteraly, I just don’t have the money.
Speaking of money, I started the Social Security Disability process yesterday. They had some kind of form on their website to work with a third party law firm that only deals with Disability cases so I filled that out and they called me within half an hour. Damn! They definitely don’t work FOR the government. Haha the guy was really cool and honest, he told me about how the government WANTS to find a way to deny you (duh) and that there are 5 separate departments working to make that happen and was also honest about how hard it is to get SSDI so I don’t know if I have much faith in this working out but I have nothing to loose since they only charge you fees if you win a claim. Good for me I suppose in that they now have a vested interest in me getting disability now haha!
Anyways, we will see how that goes… I really don’t want to be on disability but I don’t feel like I have too many other options when I have been relapsing like once a month! I need to get this under control so I can work because I am so sick of being stuck at home accomplishing nothing with my life! One step at a time I suppose, just getting really impatient! It’s been over 1 year and I don’t feel like I am in much better of a place as I was to begin with… I want to feel successful, I want money, I want to be able to go do things, and all that fun stuff!