Yeah, I know, I need to work out… That or I need to find a model for these pictures already! Actually, I’m currently looking for one on one of the model forums I’m part of ha ha but anyways!
The pain has been on and off… I don’t get it… The day before yesterday I didn’t even want to move and yesterday I felt fine! Today once again my heels hurt, my fingers hurt, my chest hurts, and worst of all, my shoulders hurt… I hate this! Right now the only pain relief I have are pharmaceutical narcotics which I am not the biggest fan of… But taking a hot bath is kind of out of the question and a cold one does not help achy joints or muscles… At night if the pain isn’t too bad I can get away with taking my sleeping medication and ibuprofen and that seems to help me sleep but during the day I’m pretty much out of luck…
Like all of my other symptoms I’m learning to just suck it up and work around it the best I can but this merely gets me through my day and I just started school so I’m going to need a little bit more than that… The pain only feeds my fatigue, it’s only been two days and I’m already finding it hard to stay awake in class, and all I want to do when I get home is sleep but I don’t because that tends to make the pain worse. I really want to see a doctor about this already because I am still rather skeptical that this is an MS related pain… I don’t know, it just feels like joint pain, muscle aches, almost like I have the flu or something but I don’t know how to explain what may be causing this and why it’s so on and off… Does anyone else experience this?
Luckily it looks like I might be seeing a doctor pretty soon who is willing to prescribe me LDN but I still have to make some phone calls and see if I can afford the visit… My neurology appointment is coming up soon as well so hopefully I can get a steroid treatment and plasmapheresis out of that but I’m not sure how all of this is going to work with school… I might call ahead and see if they are even willing to do the procedure and if so whether or not it’s outpatient or if they will have to admit me to the hospital in which case I would probably try to drop my class while I still can and get whatever money I can back for next semester… I think that’s what I’m going to look into as soon as I post this entry… Time is not on my side as always…
If anyone has experienced the kind of pain I am describing please, please, please, post a comment sharing your experience and how you dealt with it.
Also for those of you who have made donations I greatly appreciate it as every dollar has truly help me a lot!
Oh yeah, speaking of money, I am technically employed! I have been doing freelance photography work for a local online newspaper, the “Loma Linda Patch”! I have only done a couple jobs so far and it doesn’t pay much but since disability cut me off every little bit helps… Besides, it’s cool to finally be able to say that I have been published! My first job was to take pictures of the 30th annual picnic for families with children with cancer and my last job was to cover a local food truck event! Check them out!