I really don’t know what’s going on… I have tried doing a bit of research with almost no luck. I am still aching from head to toe and my skin is still really tender to the touch. It’s like a combination of flu-like body aches and growing pains plus I have been really nautilus for that last few days as well! it’s just miserable! It’s so hard to get anything done because I just feel disgusting which is why I have not been on top of my blog… I have kind of just been laying around all day lately… By the way, for anyone dealing with nausea, peppermint helps really well, I don’t have the real stuff, but it seems that even peppermint gum helps!
Anyways, back to the “research”: the only lead I kind of got was once again the theory that it’s somehow Prednisone (steroid) withdrawals. I did some reading and found out that Prednisone withdrawal symptoms can last weeks and even months in some cases… Maybe I still tapered off too quickly and it just had a delayed effect? I honestly am not sure how long Prednisone stays in your system before you start feeling withdrawals but it may be possible that I stopped taking it too quickly and I was ok for the first few days because there was still some in my system. Then it wore off and my body went into withdrawals because my adrenal glands are no longer producing the proper amount of cortisol. I don’t know.
I did however take a 20mg Prednisone pill the other day, a 10mg yesterday, and a 5mg today, but have felt no difference. Last time I stopped too quickly I started feeling sick the next day and was alleviated from my misery in less than an hour upon taking just 40mg of Prednisone so I’m not sure what this is… Could be the Prednisone or could be something totally unrelated.
Luckily I have my neurology appointment tomorrow so I just hope and pray that what ever doctor I am seeing will actually try to help me or at least just give me what I want… I for once desperately want an IV steroid treatment and plasmapheresis because I think it will really help. More then that I want a doctor who will take me seriously, not treat me like I’m an idiot, and actually do his or her job so that I can stop playing doctor!
I’ll write about how my appointment in Fontana with the new neurologist goes tomorrow after I get home! Thanks for reading!