It seems like I have been getting steadily worse for a while now but at this point it’s starting to dip into the “effecting my functionality” zone… My left side is getting so much weaker… I remember waking up in the middle of the night the other night and I could hardly lift my arm as the weight of my blanket was just “too much”… My left leg was so weak the other day at the store that it was starting to shake just because I was standing on it. I am noticing today that my right leg is getting a little shaky as well which scares me… I don’t want to be back in a wheel chair… I don’t know what I’ll do with myself if I loose the ability to walk again…
If there is one thing I have learned so far as a “newly” diagnosed Multiple Sclerosis patient (going on 1 year now) it’s that the most devoted doctor an MS patient will probably meet is themselves… That’s right… Not all of us are lucky enough to come across a doctor who truly wants to help make us better which is of course my personal case. I can’t speak for everyone but I have talked to many other MS patents of all ages who feel like they have to play doctor because their doctor’s just can’t seem to take care of business.
Everyone who has ever dealt with Kaiser Permanente will tell you that they either LOVE Kaiser or HATE Kaiser. We all have had different health situations and we all have had different experiences with those situations and Kaiser. I myself never really had a problem with Kaiser when it came to the basic, routine stuff. I mean, they have some pretty cool technological features that help get you in and out, just the way most people like it! That of course changed when I was diagnosed with Multiple Sclerosis… Funny, my family used to have United Health-care and then we had to switch to Kaiser… My mom had jokingly said “God forbid one of us get seriously sick or injured” when this happened. SURPRISE! MULTIPLE SCLEROSIS!
Yesterday was definitely a day to remember as the title says. I had the opportunity to finally meet someone IN PERSON who has Multiple Sclerosis and is about my age! I have only met one person (offline) before who has MS and that was a nurse at Kaiser who was probably in her late 40’s. Don’t get me wrong, she was very nice, but it was tottally different to meet someone who was in my age group and who was sharing a similar experience (more or less) as me.