Well… So much for getting a job, making the money, and leaving my symptoms behind. At this point I would consider myself to be having a full out exacerbation not just a minor flareup. My left leg is really weak, loosing it’s fine motor control, and coordination causing poor gate. It’s probably hard to notice right now unless your looking for it because my body is compensating for it just like my first exacerbation my locking my knee in place so I can still walk on it. Last time this led to really bad knee pain but it hasn’t been acting up long enough to lead to that yet.
Examples of loss of coordination and strength: I can tap my right foot up and down fast enough to play drums in a metal band but my left foot can hardly tap fast enough to step on a spider… If I can maintain my balance I can go from a standing position to a squatting position then back to a standing position with my right leg but with my left I collapse about halfway down…
Balance is pretty poor…I am noticing myself lean around a lot again sometimes almost tripping… Especially in the morning when I just wake up…
The fine motor control and coordination is also disappearing from my left hand again… Typing isn’t so easy at the moment but it’s not quite time to bust out the voice recognition software just yet… Getting there though… A good example of my poor coordination is the burn mark above… I was loading something into the oven and got a little too close to the rack adding another scar to my collection… I’m also noticing the strength in my left arm coming and going along with some tingling in my hand and fingers.
Vision is up and down… Sometimes it’s hard to see about 10 feet away other times I see just fine. This morning I couldn’t read the back of a pill bottle but at the moment I can read it just fine.
Horrible fatigue which crosses me over to my next issue:
Today I woke up feeling horrible… Body aches… Joint pain… Nausea… Headache… And really bad fatigue… After trying to get up and ready I realized it wasn’t all going away with a cold shower like it usually does… I then sat down on my bed and 2 hours later I found myself waking up again… Knocked out just like that… I then suspected this had something to do with my Prednisone taper… I have come off a high dosage really fast after being on it for almost a year… I looked up the withdrawal symptoms for Prednisone and here is what I got:
- joint pain
- muscle pain
- low blood pressure
- nausea and vomiting
Pretty much explained that one… No need for further investigation here… Luckily I already called in a refill for my prednisone on Friday so it should be ready tomorrow… I also got an appointment with some random doctor tomorrow to talk to him about how I should handle my steroid regiment. I just need some kind of medical input while I wait to see my new neurologist and the specialist… Based on my own research and experiance I am guessing I’ll have to jump back up to around 40mg (give or take) and then start tapering down at about 5mg a week… We shall see.
I just want the withdrawal symptoms to go away ASAP as they are causing me more pain then the actual MS itself… Pft… Prescription medication safe? Hahaha… Right…