Progress Update: Time to Slow it Down…

ms multiple sclerosis symptoms prednisone

Well… So much for getting a job, making the money, and leaving my symptoms behind. At this point I would consider myself to be having a full out exacerbation not just a minor flareup. My left leg is really weak, loosing it’s fine motor control, and coordination causing poor gate. It’s probably hard to notice right now unless your looking for it because my body is compensating for it just like my first exacerbation my locking my knee in place so I can still walk on it. Last time this led to really bad knee pain but it hasn’t been acting up long enough to lead to that yet.

Examples of loss of coordination and strength: I can tap my right foot up and down fast enough to play drums in a metal band but my left foot can hardly tap fast enough to step on a spider… If I can maintain my balance I can go from a standing position to a squatting position then back to a standing position with my right leg but with my left I collapse about halfway down…

Balance is pretty poor…I am noticing myself lean around a lot again sometimes almost tripping… Especially in the morning when I just wake up…

The fine motor control and coordination is also disappearing from my left hand again… Typing isn’t so easy at the moment but it’s not quite time to bust out the voice recognition software just yet… Getting there though… A good example of my poor coordination is the burn mark above… I was loading something into the oven and got a little too close to the rack adding another scar to my collection… I’m also noticing the strength in my left arm coming and going along with some tingling in my hand and fingers.

Vision is up and down… Sometimes it’s hard to see about 10 feet away other times I see just fine. This morning I couldn’t read the back of a pill bottle but at the moment I can read it just fine.

Horrible fatigue which crosses me over to my next issue:

Today I woke up feeling horrible… Body aches… Joint pain… Nausea… Headache… And really bad fatigue… After trying to get up and ready I realized it wasn’t all going away with a cold shower like it usually does… I then sat down on my bed and 2 hours later I found myself waking up again… Knocked out just like that… I then suspected this had something to do with my Prednisone taper… I have come off a high dosage really fast after being on it for almost a year… I looked up the withdrawal symptoms for Prednisone and here is what I got:

  • joint pain
  • muscle pain
  • fatigue
  • headache
  • fever
  • low blood pressure
  • nausea and vomiting

Pretty much explained that one… No need for further investigation here… Luckily I already called in a refill for my prednisone on Friday so it should be ready tomorrow… I also got an appointment with some random doctor tomorrow to talk to him about how I should handle my steroid regiment. I just need some kind of medical input while I wait to see my new neurologist and the specialist…  Based on my own research and experiance I am guessing I’ll have to jump back up to around 40mg (give or take) and then start tapering down at about 5mg a week… We shall see.

I just want the withdrawal symptoms to go away ASAP as they are causing me more pain then the actual MS itself… Pft… Prescription medication safe? Hahaha… Right…

12 Responses to Progress Update: Time to Slow it Down…

  1. Brb says:

    I am struggling with depression today. It comes out of nowhere. It's usually accompanied with anxiety and crying spells. The worst part of all of this is that 'sick feeling' that we get. Such a horrible feeling that I have tried to describe to people who don't have ms. Rx drugs scare me; I had horrible side effects from certain Rx I have taken in the past.
    I am almost to the point of getting a medical marijuana card, because I don't want to live in pain. I hope tomorrow is a better day for both of us.

  2. I'm impressed Matt that you are able and willing to look closely at your life and can see where some of your problems may be coming from.
    I too have some of your issues, but not as bad and I'm so glad that I have always been able to see and to type. Losing those two things would wreck my ability to remain positive, I think.
    Keep on with it Matt, and thank you so much for sharing your life with us. Being a part of your story helps me to know I'm with friends on this MS life journey.

  3. Matt Allen G says:

    @BRB: I was struggling with depression maybe 2 days ago really bad because I feel so stuck in life but luckily I am surrounded by the right people online to help me get through it quickly.

    @Carolyn: Thank you, I try my hardest to be as positive as I can and rational even when I am loosing the ability to see and type when all I do is write and take pictures…

    I'll for ever share my story and always be there for my MS friends, none of us are alone here.

  4. Soph says:

    Seriously, if you didn't live so far away from boring old Europe, I'd come by and give you a hug. Just this morning I was talking to a girl my age who has MS and is feeling perfectly fine and I looked down at my cane and hated the world. I can't imagine what you must feel like with your symptoms. :(( As Carolyn said, your resilience is astounding.

  5. Matt Allen G says:

    Yeah sometimes I catch myself feeling angry when I see another person with MS who is just fine but then I have to think… That the goal isn't it? Can't be jeoulous or anything… I mean I wish I could be like that but yeah I don't know, I feel yah, it just sucks I guess…

    Just gotta "keep on keepin' on"

  6. Matt Allen G says:

    jealous** Haha sometimes my own spelling errors drive me crazy

  7. MKAD says:

    I'm in a very bad state at the moment. Had a severe attack last month, treated with a round of SoluMedrol infusion but it didn't help much. My list of symptoms has added burning sensation, heavy arms, numb hands, stiff fingers. I have to lay in bed most of the time.
    I will see a new neuro next month. I hope he will let me try immunoglobulin therapy, and the health security will pay for it. Keeping my fingers crossed!
    BTW, Facebook is forbidden in Vietnam. Can no longer get access to it. BS

  8. Matt Allen G says:

    Oh no… Im sorry to hear… And wait what? like… They're pulling a North Korea on you? The law is prohibiting facebook? Really? Are they afraid of some kind of social media revolution?…..

  9. MKAD says:

    I have to wait for approval from health security. Immunoglobulin is very expensive I can't afford it.
    Not only FB, a crowd of people is not allowed. You don't know what it's like to be here. But it's another story… hhahahaha

  10. Matt Allen G says:

    Wow… yeah I had no idea that kind of stuff was going on there… This might be a stupid question but why don't you leave?

  11. MKAD says:

    No, yours is not a stupid but naive question. Where to go? Why don't US government or government of any other countries give visa for people who want to leave a country like Vietnam?

  12. Matt Allen G says:

    I see… I'm sorry… I just wasn't sure if it was like North Korea where their crazy leader is literally walling people in the country…

Leave a Reply

Your email address will not be published. Required fields are marked *