So I have been getting progressively worse in the last week or two, my balance is horrible, my gate is off, I am noticing some occasional weakness in my left leg and left arm, a slight loss of fine motor control and coordination in my left hand, and of course there is still all the cognitive junk. I blame this partially on stress but the most logical and obvious explanation for my steady increase of my symptoms worsening would be the fact that I am finally on a really low dose of Prednisone (steroids). I have been slowly tapering down for a while now and that seems to be consistent with my symptoms flaring up.
Since my neurologist isn’t exactly “proactive” with her patients the way she should be I have taken it upon myself to play doctor. I am increasing my Prednisone back up to 70mg over the course of this week, I believe that since I have been on such a slow taper and low dose of steroids in the last couple of months I am hoping that quickly rising back up to 70mg will reduce some of my symptoms. I have educated myself enough to know what I am doing with this medication and have been on it for so long that it is just as casual to me as ibuprofen is to the average over the counter consumer. Besides, I figure I can wait a month to see my neurologist who is just going to do the same exact thing or I can get myself started earlier before things get worse and require a week of IV treatment (Solu-Medrol).
Sad that a patient should even have to consider “self-treatment” but unfortunately thats the way it is with Kaiser, Im not sure how other doctors are but Kaiser is just a waste of time which is why I have to do so much of my own medical research. I don’t trust any of my doctors and none of my doctors really seem to care for me as a patient as much as they care for me as a source of income.