Progress Update: Getting Clumsy Again

So at this point there is no doubt that I am further relapsing… At first it was still questionable as to wether or not I was just dealing with some day to day flare ups but nope, definitely an actual relapse which is funny because I never got rid of my other symptoms from my “second exacerbation” so I never really went into “remission” to begin with but like I have said before, I don’t think that is such a good word to use for my MS, for me there are good days and there are better days along with the bad days.

Anyways, my left hand is losing strength, coordination, and fine motor capabilities again. I’m still able to type but it isn’t as easy nor is playing the piano. I am noticing that I am loosing my grip when holding something such as a glass of water. More noticeably is my walking and balance that is being effected. The strength and coordination in my left leg is once again fading causing my gate to be out of whack again but not as bad as it’s been in the past, just walking a little funny is all. Also loosing my balance a lot more but haven’t fallen yet, just bumping into walls and what not. I have also noticed an increase in sensitivity to cold objects against my skin on the right side of my body but other then that no new symptoms seem to be popping up.

Still dealing with the tingling in my left hand, the Lhermitte’s Sign, and the cognitive issues that have been present for so long now.

I took it upon myself to increase my Prednisone to 70mg the other day and last night my doctor FINALLY replied to my emails and said I should increase to about 60mg so I was close on my guess but I’m staying on 70mg as I would like to be a tad more aggressive. She also agreed that the next best course of action would be more Solu-Medrol (IV Steroids) so hopefully I can get that set up for this coming up week and get some of my balance and fine motor control back. We shall see!

10 Responses to Progress Update: Getting Clumsy Again

  1. It has to get better Matty!

  2. Matt Allen G says:

    It will, just gotta be patient is all haha.

  3. Soph says:

    The same thing happened to me in December…my "old" symptoms hadn't really got better and I joked that I had relapsing-relapsing and not relapsing-remitting MS. Ugh. I hope things get better for you quickly!

    Btw, I started Vojta therapy today (though so far it's just a bit weird, lol) – have you tried any kind of physical therapy yet?

  4. Matt Allen G says:

    Lol Relapsing-Relapsing, that's funny, that's what it FEELS like alright.

    I have never heard of that and no, no physical therapy. I try to do light exercising on my own :^b

  5. Soph says:

    There are, apparently, a number of physical therapies that are used for MS – they're quite common here, so I hope they're at least marginally effective. 😉 Vojta tries to activate your motor abilities and stuff – don't know if it's much good in the long run, but it does do *something*. Yesterday my physical therapist pressed down on a spot between my ribs and my legs started tingling. Super weird. o.O

  6. Matt Allen G says:

    Wow, interesting, I definitely have some Google-ing to do!

  7. Soph says:

    It might be some complicated Google-ing – physical therapy for MS seems to be oddly unpopular in the English-speaking world. o.O Not even Wikipedia has much to say about Vojta. (

  8. Matt Allen G says:

    Western medicine is about money and eastern medicine s about healing that's why haha….. 🙁

  9. Soph says:

    "Western medicine is about money" – I second that. The info material I got for picking my meds just screams "Pick us, we want your money! WE'RE GOING TO TAKE GOOD CARE OF IT! Er, you." :/

    I'll keep you posted here or on my own empty blog if Vojta does anything for me. 🙂

  10. Matt Allen G says:

    lol "Pick us, we want your money! WE'RE GOING TO TAKE GOOD CARE OF IT! Er, you."

    And I'll second THAT

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