Progress Update: Lhermitte’s Sign

PhotobucketSo lately it seams like my left hand is doing much better, I still feel the pins and needles in the tops of my fingers but the fine motor control has improved immensely! I can play piano (not 100% though) and I can feel the strings on my guitar well enough to play some chords but melodies are still a little tough… I am mostly glad that I can type with both hands again, as cool as voice recognition software is, I prefer to just play it old school and use my fingers…

Anyways, I wanted to mention the one symptom that has proven to be persistent among all others in the last few weeks…

Lhermitte’s Sign

I have still yet to grasp a complete understanding of how and why this happens but basically what Lhermitte’s Sign is, is the sensation of pins and needles or electric shock in the spine and/or limbs when the head/neck is tilted downwards… I Mostly get it in my arms and it feels just like being electrocuted if you have ever been unfortunate enough to experience that like myself… When it’s really bad it radiates throughout my legs and toes as well. This is now the most annoying symptom I am dealing with at the moment…

I don’t know if my cognitive issues are getting better or if I am simply getting used to them but it hasn’t been bugging me as much lately… I could just be focusing on the Lhermitte’s Sign though, I am not sure… Balance has not changed at all either… Vision seams to be just fine though so that’s good. I am really going to try to “relax” in the next week or so and avoid any kind of stressful situation which should be easy now given my current personal life’s situation…. Yeah….. Anyways….

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Side Note: I am working on a website with a fellow MS friend of mine, Britney, called “Young MS” and it’s basically going to be a place for young people with MS to meet people, learn, and realize that MS is not the end of the world! It’s under construction right now but feel free to check it out and show your support!

12 Responses to Progress Update: Lhermitte’s Sign

  1. Welcome to the MS blogging community, Matt. We're a friendly helpful bunch. Good luck on your journey.
    Judy

  2. Matt Allen G says:

    Thanks! You have a lot of MS blogs you follow, I will be looking through them all, thanks!

    PS – Follow me to add me to your "Directory" you got going lol and check out the "Young MS" Website we are working on. Thanks!

  3. Karen says:

    Hey Matt,
    A big welcome to the MS blogsphere. Good to hear your fine motor control is improving. Hope it comes back all the way for you. I play the harp and I really mised it when my hand went numb. Feeling is back 100 percent now, so I am once again able to play.

  4. Matt Allen G says:

    HARP?!?!?!?!?!?!? AWESOME! Every time I watch Harpo Marx play harp I want to learn but that's not going to happen lol I'll stick to piano.

  5. Muffie says:

    Hi, Matt, Welcome to the MS blogosphere. I'll be sure to check out your website.
    Peace,
    Muff

  6. Blinders Off says:

    Welcome to the MS blogging community Matt…Judy said it best!

  7. Lisa Emrich says:

    Oh, here's where my peeps came by to welcome you. Excellent.

    I am also a musician and difficulty playing the piano was one of my earlier symptoms which ultimately led to diagnosis. For a couple of months, I had zero strength or control of fingers 4-5 on my left hand. That sucked big time.

    If you are interested in checking out even more MS blogs, please com check out the list I maintain at http://msblogcentral.blogspot.com .

  8. Matt Allen G says:

    Yeah my left hand is the one that gives me trouble, my first exacerbation rendered ALL my fingers on my left hand USELESS, this second time around it wasn't AS bad but bad enough to make doing pretty much everything difficult. It's much better now but still not 100%, I can play certain songs on the piano, might post a video soon, idk lol…

    Awesome blog by the way! I'll have to look over it more tomorrow when I wake up! Thanks!

  9. dukedraven says:

    Some people have pain with their Lhermitte's Sign. Fortunately I don't have that. I had mine for more than 3 years though. It's the least of my worries. There are much worst things. Cheers!

  10. Matt Allen G says:

    Yeah mine at it's worse is borderline pain/sever discomfort. Either way not the best feeling in the world especially when your driving…..

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