Progress Update: Getting Better AND Worse…

PhotobucketIn my last progress update I asked the question “Am I getting better or worse?”. I have finally come to the conclusion that I am getting both better AND worse…

The initial symptoms that presented themselves at the beginning of this relapse seem to be improving. The fine motor control in my left hand has without a doubt improved immensely: I can play piano again! Even a little guitar! The pins and needles in my left hand have greatly reduced, I can still feel a little in my fingertips but for the most part I don’t even notice it anymore. I also only seem to feel the pins and needles in my right hand when I first wake up if I remember correctly. The pins and needles in my legs obviously went away a long time ago so that’s pretty much that for the initial symptoms.

Now the bad: Balance and Lhermitte’s Sign. In the last few weeks my balance has got much worse and of course the Lhermitte’s Sign has been bugging me more then anything! It’s like the better my other symptoms get the worse these last few symptoms get…

I really want to get some new MRI’s done, one of my brain and one of my spine, so I can see what kind of changes have happened as far as my lesions are concerned. There are obviously new lesions in my spine/neck which would explain the Lhermitte’s Sign but I’m not sure about everything else… So hopefully I can do that soon.

Something I ironically keep forgetting to mention is my cognitive functions… They have not been so good lately but of course for how long I really can’t remember because I keep forgetting to mention it in my progress updates! Short term memory is horrible! I constantly loose my train of thought and struggle to find the right words. Ill see the object or concept in my head but I just won’t be able to find the proper word for it! Drives me nuts! Not sure what can be done about all this but I feel like I need to start playing some “brain games” or something to maybe stimulate my brain a bit…

So that’s pretty much where I’m at… Lhermitte’s Sign driving me crazy and balance is deteriorating to the point where I really have to watch my step… Haven’t tripped yet but I have come close a few times so hopefully I can avoid it all together.

Oh yeah, that crappy picture above, took it with my lame phone… Despite my current balance issues I went bowling the other night for the first time in a long time. Not the best score but hey, I finished with a Turkey haha… I know half of my poor score was because of my symptoms and also because they had just oiled the lanes so I couldn’t get a spin going with the house ball… I really don’t like my ball because it has too much of a curve so I didn’t have the control I usually have but I don’t know, excuses, excuses…

Anyways, we will see how the next few weeks treat me! Thanks for reading!

7 thoughts on “Progress Update: Getting Better AND Worse…

  • January 10, 2011 at 5:41 am

    Maybe not better or worse Matt…just different. Many symptoms will come and go, for no apparent reason. MS is very unpredictable and somewhat of a mind f*&^
    I know this will sound trite…but try to go with flow, or you will drive yourself crazy.

  • January 10, 2011 at 3:57 pm

    oh yes matt! listen to Karen! she has helped me so much in my beginning months… i was making myself crazy too trying to figure out what the hell was going on with my body. karen and a few others helped me to realize that it's just what it is… MS… and to stop trying to figure it out. these days i do my best to just take what is offered and make the best out of it (symptoms i mean)… some days i walk good, others not; some days i'm dizzy, others not; some days i'm really really tired, others i have a burst of pseudo-energy!

    i have the brain crap going on.. hate it too… but i'm learning … i keep lists, and notes, and calendars.. it's helped.. and the games help… try them out!

    most of all… listen to these wise MS folks… they can give you some really good info and help you keep your sanity… try not to let it consume you (hard to do)… i'm still struggling with that part… it's an acceptance thing… accepting of the new normal πŸ˜‰

  • January 10, 2011 at 4:41 pm

    "accepting the new normal". Something I have been working on for a while. I have always been a "mechanically/technical" kind of person, I was in many engineering classes and programs throughout middleschool and hischool because that's how my brain worked. So it's tricky to re-train my brain into accepting that when it comes to MS and the relapses and remissions, IT'S NOT like slipping a switch from sick to healthy. So I have been doing my best to just "go with the flow" because I am aware that really, that's all I CAN do. But its hard to shed myself of that part of me that want's to know exactly what is going on… In fact, I don't want to loose that part of me, I am just trying to teach myself to not let it drive me crazy, to accept that I might not always find the answers.

  • January 11, 2011 at 11:53 am

    Ew, random symptoms. I know the feeling. πŸ™ Since my second relapse, I keep getting paranoid about everything new that comes up because it started with just a hint of pins and needles and then forced me to go back to the hospital two days later – now every weird headache and bad-legs-day makes me wonder if another relapse is coming.
    I'm glad you're at least feeling worse AND better though! πŸ™‚

    I've read in another entry of yours that you're on an anti-inflammatory diet – may I ask what exactly you mean by that? Do you follow a proper diet sheet or are you just trying to eat enough Omega3's and all that?

  • January 13, 2011 at 9:21 am

    Oh wow, thanks. I haven't seen that post yet. πŸ™‚

  • January 13, 2011 at 4:55 pm

    I need to update it and clean it up a bit but the info is pretty much there lol


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