I MIGHT Have Multiple Sclerosis

NOTE: I do not have a medical degree of any sort. The following information is my personal description of the disease as I understand it from what I’ve been told by doctors and from my own personal research. Please feel free to email me at mattalleng@yahoo.com if you have any questions.

multiple sclerosis ms what to do

When most people start experiencing strange symptoms like numbness or weakness they usually don’t think “I might have Multiple Sclerosis (MS)” unless someone suggested it to them or they know someone who does have MS. So more then likely if you are reading this then you have been experiencing some kind of symptoms that pointed you in this direction and you are hopefully taking the initiative to do your own research and find out the likeliness that you might have Multiple Sclerosis rather then waiting for a doctor to tell you his or her opinion or read results to test you may already be waiting on.
So first lets go over some of the common symptoms of Multiple Sclerosis. Everyone experiences this disease differently and so the symptoms someone with MS will experience will vary from person to person but here is a list of the typical symptoms patients will experience.
  • Double vision
  • Eye discomfort
  • Loss of balance
  • Muscle spasms
  • Numbness or abnormal sensation in any area
  • Problems moving arms or legs
  • Problems walking
  • Problems with coordination and making small movements
  • Tremor in one or more arms or legs
  • Weakness in one or more arms or legs
  • Constipation and stool leakage
  • Difficulty beginning to urinate
  • Frequent need to urinate
  • Strong urge to urinate
  • Urine leakage (incontinence)
  • Uncontrollable rapid eye movements
  • Vision loss (usually affects one eye at a time)
  • numbness
  • Facial pain
  • Painful muscle spasms
  • Tingling, crawling, or burning feeling in the arms and legs
  • Decreased attention span, poor judgment, and memory loss
  • Difficulty reasoning and solving problems
  • Depression or feelings of sadness
  • Dizziness and balance problems
  • Hearing loss
  • Problems with erections
  • Problems with vaginal lubrication
  • Slurred or difficult-to-understand speech
  • Trouble chewing and swallowing
Again, symptoms vary from person to person, for example, most people start experiencing vision problems first whereas loss of vision was one of my last symptoms to appear during my first exacerbation. I also have experienced many symptoms that are not on this list such as Lhermitte’s Sign and loss of taste. 
Regardless, if you are experiencing any number of these symptoms (particularly weakness and loss of balance along with vision issues) then you might want to bring MS up to your doctor and see about getting some tests ran. Your first going to need to get a referral to a neurologist which leads me to the most important part of visiting doctors when trying to solve a medical issue: Tell them what you want and get what you want! Many doctors like to assume that their first impression is the right answer, they like to use the words “I don’t think that’s really necessary” but guess what, the only thing running an extra test can hurt is someones ego! So if you hear those words then tell your doctor that you would still like to run the test just to be safe, for your own peace of mind, after all, that’s how diagnosing works, you start by eliminating and ruling out each possibility til you find your answer. You HAVE to take control of your medical life! It’s YOUR body, YOUR the boss!
The first test you want is an MRI: If your MRI results show that you have lesions on the brain then this is one of the main signs of Multiple Sclerosis. Take a look at a picture of my first MRI results below, see those little white spots? Those are MS Lesions.

Now the second most important test: A spinal tap, or lumbar puncture as it’s sometimes called. Don’t let this scare you, everyone makes a big deal out of this but honestly, it’s not that painful, in fact, the local anesthetics hurt more then the procedure itself! This is a very important test because if it comes out positive then you know you have Multiple Sclerosis but here is the the catch, if it comes out negative that doesn’t mean anything… You could very well have MS but still come up with negative test results with a spinal tap because they are simply looking for Myelin proteins in your spinal fluid that may or may not be present at the time of the procedure. Don’t worry about what that is just yet, just know that a positive means MS but a negative means nothing. Some people have to have several spinal taps before they finally confirm MS but in my case, I got a positive to back up my MRI the first time. I looked at this as a good thing because I would rather know what I am battling right away then go years undiagnosed fighting an enemy without a name or a face but that’s just my opinion.
You should also ask to have other various tests ran to make sure you don’t have something similar to MS such as Lime Disease. Have everything checked out, remember, this is a process of ruling out every possibility so take every test you can.

At this point it never hurts to get a second opinion regardless of what your test results show or point to. If your neurologist doesn’t seem to think it’s MS then get a second opinion. If your neurologist does think it’s MS, get a second opinion. Again, can’t hurt anything but someones ego which is far less important then your health and well being!


One thought on “I MIGHT Have Multiple Sclerosis

  • May 14, 2017 at 5:50 pm

    Ok, this makes sense now. Was not trying to be harsh in my comments, I guess I just did not unsendtard how this was helpful. From the examples in the article you linked, It looks like you have to be above the phaseout range for this to work.


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